Amy, Brad and Ali's Support Guestbook

TwinCities.com (Pioneer Press) Page

Friends Forever - Our Famous Aimus - Wish You Were Here

5/17/07

I am closing the cover on this book, of the  unforgettable  journey our Amy; a great, caring wife, mother, daughter, granddaughter, godmother, sister, auntie, niece, cousin, in-law, neighbor and friend,  took us on, to get us to where we are today. Not a journey that any of us wanted to take with her, but I have faith that what is promised to us in the better life was there waiting for her with open arms. I thank Kurt for posting all the update e-mails on his site that Brad and I sent out. Also supplying all of us with a guest book, that holds many memories for Brad and Ali to ponder over in the coming years.  This should be a reminder to all of us, "Live today as though it were your last".  Amy, Brad and Ali's Support Guestbook Here on earth, our body protects us from what is really happening. This experience does not seem real.  Right now Brad and Ali, along with others, I'm sure, feel like spectators watching from a distance, and just going through the motions to get through the day. I've even hoped that this is all just a dream, but then I awake and find out that IT is all real. I've talked to God and told him we will do anything to just bring Amy back, knowing quite well this is impossible.  Like Ali said, over and over and over .. "This is the worst day of my life." I know, that we all know, that reality has to be faced, and that will come in due time.  I know in time Brad and Ali will begin to believe that they WILL make it through all of this. That doesn't mean things will be the same as they were or that we won't miss Amy any more, but it means things will be all right. In the mean time keep Brad, Ali, Brenda, Brian, Amy's family and our family in your thoughts and prayers.   Grandma Ely has taken a leave of absence from heaven and is right there with Her Brad and Ali, this very moment. (doing the side kick)  How comforting is that?????    ...Brad and Ali will start a new journey and Amy will be right along with them to guide them on their way. She will be their very own private guardian angel. How awesome!!!!                   

Down the road, it may even be that their experience of losing Amy, can be very helpful to others facing similar losses. Who knows where God is leading them, and where this whole journey all fits into the big plan  .. Thank you all, again, for your prayers and for helping bridge this time over troubled waters. I am confident that all of your support will continue on thru the coming days, months and years, as friends and family will play a big part in Brad and Ali s healing process. And so it was said.. Peace be with you   and also with you. Amen .  This is not the end but a new beginning . God Bless all of you!!!! God Bless our Ali and God Bless our Brad!!!

Aims, save us a spot by the lake .you ve gone home have fun!!!!

CAROL / MOM / GRAMA

Life is short

Forgive quickly,                                                                                                      

Kiss slowly,

 Love truly,

 Laugh uncontrollably,

 And never regret anything that made you smile.

Life may not be the party we hoped for,

But while we're here we should dance

5/15/07

On behalf of Brad, Ali, Brenda, Brian and all of our families we would like to thank everyone for all of the support, beautiful flowers, cards with awesome words, beautiful cards made by all of Ali s friends at school, memorials, remembrance e-mails, help with the picture boards, food, kitchen help, just time given of yourself, whenever and wherever needed, mowing of Brads lawn and taking care of Ali whenever needed. A very special celebration of family and friends, put special meaning into the remembrance of Amy s life, reminding us again how much she was loved and how much she will be missed.  It was truly a very personal loving Celebration of Amy s life.  .. THANK YOU goes out to . Bother-in-law Big Johnny, Cousin Jyll, sister-in-law Sheri, band members, playing  Wish You Were Here , bother-in-law Kurt and special life long friends, Mike, Neil and Dave.  IT WAS AWESOME!!!   Thank you thank you  thank you  I still could go on and on and on with the thank you, but know that every little thing done and spoken by you during this time did not go unnoticed. !!!!!!   This has been a very difficult time, but everyone has been there for us.  Amy s celebration of her life on Monday May 14, 2007 was something that will never be forgotten. Thanks a million to everyone, again, which helped make the evening a real honest to goodness celebration. All the different faces coming together to try and make things a little easier for those of us left behind, took my breath away. It is so comforting to know that so many people care about Brad, Ali, Brenda, Brian and all of their families. Everyone has been so wonderful, so kind and so thoughtful. I just don t have the right words or enough of them to express our feelings. Just knowing you were there, somewhere, somehow makes it all a little easier to handle. We thank Robert s Funeral Home for helping make this time a little easier on the family with their addressing our wishes and wants at every command. Thank you very much for your kind and gracious assistance. We so appreciated your help.

I am also asking for prayer for Amy s Uncle Joe, who when coming down from Duluth to attend Amy s funeral, started experiencing chest pain. He was taken to United Hospital and under went balloon angioplasty this AM. Brad just called and reported that things were going ok.

After the celebration of Amy s life, several of us went over to Major s in Inver Grove Heights to just be together.  I am so sad to report and really don t know how to say this but something terrible happened that is unbelievable. Dave or better known as Santa Dave, one of Brads dearest friends from the Cooler Crew, who was one of the first to arrive at the funeral home, fell over onto the lap of a friend next to him at the table. 911 was called and after 45 minutes of CPR, Dave passed away on the floor before our very eyes. We prayed as a group around Dave while the kids made a card recognizing the loss of 3 wonderful people this week         Amy TeGantvoort, Mark Guddard and now Santa Dave. Please God help us to understand why so much pain so much hurt, so much sadness.  You are almost giving us all too much to handle  . We all have a major life challenge before us  .. God didn't promise days without pain, laughter without sorrow, sun without rain, but HE did promise strength for the day, comfort for the tears & light for the way.  "Lord please; take care of the person who is reading this message, their family and their special friends. They deserve it and I love them very much" Everyone take care.

Carol  

5/12/07

Well, all the arrangements are made and finalized. The visitation will be at Roberts Funeral and Cremation Chapel in Inver Grove Heights, between 4:00pm-7:00pm. This is the time to visit and talk with Amy s friends, relatives and people you would just like to meet, as we will all have one thing in common ..we all had some connection with AMY and will miss her very, very much!! The remembrance will begin at 7:00pm and go until 8:00pm.  This time will be set aside for all to hear  My memories of Amy  that Brad received from you in your e-mails. There will also be special celebration music, reading of a poem written by Amy, at the age of 11, a  Letter To Mom  written by Ali and a comforting message to Brad and Alicia, to help them carry on the next few days, weeks, months and years. Closing will be a spiritual reflection. 

The address of Roberts Funeral and Cremation Chapel is: 8108 Barbara Ave. E. Inver Grove Heights. 651-455-2035     

5/11/07

We are all still in shock even tho we knew our Amy was a very ill girl.  It is still so unbelievable.  Amy is already deeply missed, but she is in Gods hands now. Even tho Amy is gone, she will never be forgotten, BUT remembered daily in our hearts and minds forever.  As far as arrangements being made, Brad will let me know and I will  post the time, but we do know that The Roberts Funeral Cremation Chapel, in Inver Grove Heights, will be the home, where we will all celebrate Amy s life, on Monday May 14, 2007., around 4:00pm. Details will follow with directions.  It will be nice to see everyone and thank you all in person for your prayers and support.   Ali is doing ..OK. It s so hard for her to understand. The thought of her never seeing or touching her Mom again is very devastating to her. Ali said to me  Grama, I just don t have anymore tears.   Brad is filled with overwhelming sadness and just trying to keep on task, as are Brenda, Brian and families. It s so hard to say goodbye to someone you love so much, but they must and In the days, months and years to follow Brad and Ali will have many moments of grief. Oh how my heart goes out to them  .However they also have some awesome memories!!!!

5/10/07

Sad to have to post this update on our Aims. Amy passed away with family at her side at 5:15AM this morning, I will post times and date of when we will be celebrating Amy's life. Ali, Brad, Brenda, Brian and all of our families, are holding up as well as can be expected. Thanks again for all of the prayers, support and love thru this unbelievable time.

5/9/07

Its been a very long day and a very long night. Brad stayed up at the hospital over night to be close to his Aims. Brian, Gail and Clint, Brenda, Deano, Sis, Big Johnny, Kurt, Jill, Kevie, Maryanne and Pammy were also there for the same reason late into the night.  Dr. Otremba did come in twice to talk to us in length. He used a lot of big words but after all was said and done, he said to never give up hope, but reality does have to be talked about. With Amy being in ICU...again, the Doctor did say that they were and are doing as much as they can to get her out of this valley. They are not just doing comfort measures.  Doctor feels that a few days ago, Amy had come down with a UTI and was treated for that with an antibiotic. however, seeing what is going on today, something else was going on inside of Amy that wasn't and still hasn't been located. Aims is on IV antibodies, fluids, sedatives and also in a medicine induced paralyzed state. Her body needs a rest from the effect of all the  toxins not being ellimated.   I also learned that an EEG was unable to be done this morning. About 4:00 PM Brad was with Amy and asked Amy to squeeze his hand, and ...."she did".Brad was told that Amy could hear every word he was saying to her. Knowing this there were no words left unspoken.  Circulation to her legs is poor at this time and they are cold to the touch. The Dr's. continue to want to discuss the DNR. With Amy still squeezing Brad's hand, resuscitate is the answer. If they change their minds, they will know when the time is right for that decision. Brad has been very honest with Ali, in telling her that Mom is not doing well.  Ali said at least Mom isn't in ICU. It broke Brads heart to tell her that is where she is going to be transferred to right now. He explained that they will be taking good care of her and do what is best. This is to much for our little 9 year old, Ali, to have on her little shoulders at this time, or any time. .  Brad will know what to do and know what to say when the time is right. Please God give Brad the right words to say at the right time. So hope and faith are our words for today. Brad thanks everyone for all the support that is being given to him, Ali,  Brenda, Brian and Amy's entire family his entire family during this difficult time. All of our bodies are unique. Why something happens to some and not to others, It is a question that can be answered only by God. Its all apart of Gods big plan. Hard to stomach!! We all love you so much Aims!!!!!    God will be with you always, and is there with you this very minute...He is with all of us.....pray...pray...pray

5/9/07

So much for the saying  no news is good news . I m back in town and on my way to the Hospital. As Brads update stated, Amy has been not doing well since Monday. As of right this very moment, everyone is up at the Hospital, as the Dr. has said that Amy is in shock and that her organs are shutting down. This is not a good thing as she has been down this road once before and this is very hard on her organs to have to go thru it twice. She also had a central line put in, so they can give her meds that will go straight to her heart.  Her heart has been racing and they want to keep that in check. Thru all this Amy s numbers have been stable. She was unable to stay calm enough last night for the MRI, so that never took place. According to the nurse an EEG was done this morning to rule out a stroke or things of the like. We have been in this valley with Amy before, so we are not to give up. WE WILL NEVER GIVE UP!!!  Please God give Amy the strength to get thru this valley, again. YOU CAN DO IT!!!!  Brad and Amy s family have a lot of support up at the Hospital. Nothing like family and friends, to be there for you at a time like this. Ali is at school and today and one of her main concern is that she fall and ripped her favorite pants.  She knows Mom isn t doing well and this has to be bothering her. Ali, our precious Ali!!!!!  They all need all the prayers, everyone can send Amy s way. Pray pray pray!!!  Pray for Brad to have the strength to make decisions at this time. Brad was given some choices that He, Brenda and Brian had to start thinking about making real soon, regarding  What if  .. Not an easy time  . Brad said  I love you Aims and Amy said  I love you too, Brad    Thank You God for letting Brad and Amy share these precious words!!!  May today there be peace within.  .. Prayer is one of the best gifts we give.

5/8/07

Hi all, Brad here.  Mom's up fighting the forest fires by Ely so I will be giving today's update on our Aims. 

On Saturday Brian, Ali & I went to see Amy before going to tour what is to be her new place for physical rehabilitation.  Nobody really thinks that she should be moved right now because of her setback but I know the doctors are pressured by the administration to move her because the 90 day red flag has popped up.    I guess I can't blame them.  You wouldn't believe how thick the bills have become.  They could give War and Peace a good fight.  The rehab place is in Robbinsdale on the NW side of Mpls.  Quite the drive.  We first entered the place on the first floor and were pretty bummed out.  It's a very old place and not kept up very nice.  It felt like a place to go and die.  We were directed to the 4th floor to see a nurse.  It felt much better up there as that was the main entrance.  The building is on an incline.  The nead nurse was nice enough and gave us the tour along with introducing u s to a couple of the assistants.  The beds had paper thin mattresses and not much else in the rooms.  The best part was the little aviary located in the front room.  We didn't feel that they had the right accommodations or staff to properly care for someone with complications and needs as Amy has.

On Sunday, Ali spent most of the night with her cousins Tony, Paige and Ashley, while Kurt, Jill and I went to the Heaven & Hell concert in Minneapolis.  We met up Cooler Crew friends Jason, Mike & Penny before heading to the show.  I had a nice break from the hospital.  We even bumped into my old best friend Rick and his son Mike.  This was the first time I met him.  Coool dude!  I did briefly talk with Amy but she wasn't in the mood to talk and there were people in the room at the time. She sounded very agitated and confused.

I went to the hospital early Monday morning to protest the possible move to the rehab facility.  I didn't have a hard time convincing anyone because Amy's deteriorating condition made the decision for them.  She was hallucinating and shaking uncontrollably all day.  We attributed it to a couple of new meds they had her start to take that were supposed to help her get motivated.  Ritolin and a different type of anti-depressant.  Her shaking might be from the drugs still her system or from her lack of sleep and diet.  She wasn't eating a thing.  I was pretty worried and emotional.  I felt so bad for her.  She could remember her name, month, year and where she was.  But was very hard to understand.  It was real hard leaving her to go to work.  I was able to say good night to her later on the phone anyway.

On Tuesday I called to see how she was and it didn't sound good.  I went in only to see her even worse than the day before.  I was visibly upset but Aims asked me to calm down.  I could barely make out her words but I understood that being upset wasn't a good thing at this point. All day long she was trembling, mumbling and crying out loud.  We shared quite a few tears together.  I have a hard time not being able to help out anything more than just trying to keep her as comfortable as possible.  A husband is supposed to protect his wife from such pain and suffering.  I'm just numb all over.  Amy was really depressed because she couldn't remember what happened 5 seconds ago.  I just stood at the end of her bed for the longest time after saying good-bye.  She didn't know I was there.  Just watching her was breaking my heart.  Why is this shit happening to my babe after she was getting better?!?  Brenda a nd Bri an also visited her later in the day and said she was still in rough shape.  I'm trying to think positive but am having a real hard time doing so.

It's now midnight, Wednesday morning and I'm about to call the hospital to see if they have the results from an MRI and an EEG that Amy was going to have done over 3 hours ago.  They needed to get some Adivan to calm Amy down to sit still for the MRI.  I'm so scared to call so I decided to type this update first as a type of personal therapy.  I actually even prayed for the first time.  Amy needs all the help she can get.  Please pray or whatever you can do for good news coming from the other end of phone.......

She's still getting the MRI right now at 12:10am.  Her 3rd shift nurse will be calling me soon since she was busy when I just called.  I'm all lightheaded right now.  Things don't even seem real right now.  I'm typing this in real time right now as you can see.

5/4/07

I wanted to post an update before I head up north to Ely, again. Yes, I have another dentist appointment and want to visit my Auntie Ann who is still in the hospital in Ely.   Amoco is loving me!!    As you remember we were all waiting for the big decision to be made on where Amy was going to be discharged too.  Dr. Otremba was in yesterday and said that Amy is unable to be transferred anywhere at this time. When a patient is in the hospital for  90 days, the administration starts getting antsy. Dr. Otremba is there, doing what is best for Amy, and said she will stay right where she is.  He did write a prescription for PT to come down to Amy's room every day now.  We are hoping that Alex will be the therapist of choice. Amy has been basically just lying in bed since this last set back, but Dr. Otremba said it's time to get moving. Amy needs to get motivated to get this show on the road. Easier said than done, however, as Amy continues to say that she can't feel her legs and can't even bend her knees. Her muscles need to be strengthened all over again. They will start with little steps, making the ultimate goal closer in sight. Oh, yes results did come back from the CAT scan taken last week. All came back negative. As you remember Aims was having severe stomach pains, and they wanted to rule out other problems than the one at hand. She continues to have fluid in the tissues surrounding her abdominal cavity. Her tummy continues to be very hard to the touch and distended. Aims is still on isolation, so everyone going in should gown up when visiting her. I will take Ali up for a little while today.   Aims said "I'm not very good company" at this time. I'm thinking just seeing Ali will give her day a little sunshine. I'm praying that Amy can become motivated and get the strength that is needed to do the necessary exercises to be able to get out of bed. Please God, bring peace and comfort to Amy who has faced days filled with pain and depression.  Help her through these rough times, dear Lord, and let her know that there ARE brighter days ahead!!!

Brad spent some time with some special friends, Mike and Dawn, last night. They helped bring some normalcy to his life right now. Thanks guys. Ali will be hanging out with Abbie and Ray while I'm gone next week. She loves being with her friends. (Thanks Laura and Kari again)   Brad will be doing the posting while I'm gone if anything pertinent comes up with our Aims.  I will be back next Thursday in time to bring Ali up to see Mom up and walking.         Prayer is powerful, and prayer is one of the best gifts we receive and give. There is no cost but a lot of rewards. Let's continue to pray for Amy, Brad, and Ali. They need you ALL right now!!!!!   Amy, Brad and Ali's Support Guestbook

JUST GOT A CALL FROM BRAD!!!!!!!  UPDATE AFTER THE UPDATE!!!!                                                                      

Brad reported as of 2:00PM this afternoon  a new decision has been made. Brad talked with the social worker, Kathy and she said that Dr. Otremba stated that Amy's numbers are stable and Amy is medically sound. They are looking at a transfer as soon as Monday, to Robbinsdale Rehab and Care Center . If there is a possibility of the bed being taken before that, she could be transferred sooner    like tomorrow. This is all happening so fast.   Nurse Tammy did say that Amy was able to sit up for 15 minutes today, without feeling dizzy or sick. Amy did shed a few tears, with this accomplishment today but I guess "no pain no gain" "Keep on trying, Aims!!" We're right behind you, here!!!!!  So is our God!!!

5/1/07

I thought that I would do an update on our Amy since my last posting was before the weekend. Nothing too much new to report, however. Amy has been very discussed, frustrated and depressed. Maryanne. Joe and Joe s friend Candi, went to visit with Amy today and that was an awesome, super surprise. They made her day. Thanks guys!!  Brad was up to be with Amy after work today and took her wraps off of her legs. He said the edema is going way down. He s hoping this will help with getting her up in the wheelchair tomorrow. He will be going up in the morning to help encourage her and to help transfer her into the WC. He wants to see some improvement as this is such a moral boost for Amy. The weekend was the same 4 walls for Amy. Brad and Ali went up on Saturday, but Amy wasn t able to get out of her bed. The lactalose that Amy is taking is working overtime at this time, making it hard to even move in bed. Brad and Ali had a nice visit, however, but not what they were hoping it would be. Ali was in need of some 1 on 1 time with her Dad. She had a lot of questions that needed to be answered. Brad is so good about keeping her in the realm of things and answering all her questions. They went on a bike ride, planted the plants in the yard, that Mom was given, while in the Hospital. They just hung out together by themselves as this was greatly needed, after they spent time with Amy in the Hosp.   They had a lot on there minds and needed the time together, so they didn t make it to the BQ that Brian and Karen had invited them to on Saturday.  Ali just loves to be with Lexie and Brielle. She misses not seeing them. Brad and Ali are hoping they can get a rain check on the BQ. They need family and friends. Brad also didn t make it to Craig s going away party, but his thoughts were there with him, believe me. Just to much on his plate.      When I came today, one of the first things Ali said to me was that  Mom may have to go to a nursing home to get well.  Too much, to have to understand, for such a precious little girl, but it is reality     Brad also said that Amy had one want  . an electric tooth brush. She felt that she needed a better way to do oral care. Her hands are still shaking, and she has been unable to really use a regular tooth brush. We all also know that the nurses are far from being dental hygienists. She felt this just might be the answer.  Brad will have one for her tomorrow. Ali had a great time at the school carnival with all of her friends on Friday.  Was the best day ever  said Ali. Sunday was a real treat. Nana took her shopping for 3 new beautiful outfits. What Ali really enjoyed was going to Nana and Deano s house to play the organ. Nana taught her to play the song where two are at the key board. I never knew that Ali had such an interest, in the organ (piano), or that Brenda (Nana) knew how to play so well. You have a real talent there Brenda!!!! It was a super, fun special day for Ali to be with Nana and Deano   After a game of disk gulf, and Ali back at home, Kevie invited Brad and Ali over for supper. Sheri and Kev put a wonderful grilled meal on for the 2 of them and Ali said  I was so stuffed . She also reported that she took second in bowling on Wii. Dad took last. Yes, Kevie took first. All thoughts, concerns and worries are on Amy constantly, right now. It s healthy to have these times with other people to give their thoughts and concerns a little rest. Amy has been more alert and able to carry on a conversation today. She along with Brad are eagerly awaiting the test results tomorrow. That will determine if she stays or where she will go. Please God do what is best for our Amy!!!!    May God keep Amy in touch with all that she is and all that she is meant to become. A well Amy!!!!!  God is our hope and strength, and present in time of illness. Keep those prayers coming to Brad, Amy and Ali s way. We know that prayer changes not only circumstances but also the ones who do the praying!

4/28/07

Hi all   Brad here again.  I m giving mom a break from using her spell check today.

Today Brian and I met in Amy s room with many of the key players in Amy s recovery process.  Dr. Otremba led the conversation with a recent history of Amy s condition and an outlook prognosis that included a possible hospital discharge as early as next week if all goes well.  He did say it was just a plan and not necessarily set in stone.  It all had to do with Amy s ability to get up and move by herself.  Since she doesn t qualify for any of the acute-care facilities, our focus is to find Aims a nice long-term care facility that specializes in bariatrics so it s comfortable as possible.  This might mean looking outside the metro area. And all of us were OK with it as long as it meant that Amy was getting the best possible care available.  Also in the room was Mary, our Dakota County Social Worker; Mindy, our Oncology Social Worker, Cathy, the Oncology Nurse Coordinator and Alexandra (Alex), her Sister Kenny Occupational Therapist.  Alex was a real asset on Amy s behalf.  She stood up to the doctors and nurses and demanded that they treat Amy with respect at all times by paying closer attention to her physical well-being. Asking them to keep her clean and organized so it could help her work on the rehab side of things much easier.  She reminded everyone that we re all part of the same team.  We all agreed.  Brian and I talked afterwards and thought it was really nice that Alex was on our side.

The meeting lasted about 45 minutes.  It was very informative.  We discussed everything from the financial side to the placement and treatment side of things.  Everyone understands one thing for sure, that this a very complicated situation and that we all need to be on the same page going down this road together.  When Amy was asked if she had any input, all she could say was that she wanted to go home.  It broke my heart.  I can t imagine how frustrating it is to be locked up in a bed for months on end without getting much better.  Even though I went into the meeting being dead set against setting any discharge date, I felt better knowing that there s at least a plan in place.  (Bush should have been there)  I think Aims feels better about it as well.  I plan on taking Ali up to she her mommy this weekend since she hasn t been able to see her in a couple of weeks due to her set-back and quarantine.  The staff felt that it would be OK if Ali stopped by for a little bit over the weekend.  I d like to be able to wheel Aims down to the hospital park so she can enjoy some of this nice weather that we ve been having.  Please feel free to stop by and say hi as Amy might not be as close by come next weekend. 

Thanks again for all of the fantastic support that you ve shown Amy, Ali & I.  You people are the greatest!  I also want to acknowledge how much I appreciate all the work that my mom puts into assembling all of these updates. She s a very busy person and to take the time to provide some extremely detailed information is invaluable.  That s not to mention that the main reason why she s busy in the first place is from taking care of Ali after school and keeping things as normal as possible.  Thanks Ma!  You are wonderful.

Happiness is:  Having a kick-butt support system during some bad times.  (Kind of like something some awesome mother might say)

4/27/07

Sis and I visited with Amy on Wednesday and found her to be in pretty good spirits. I m happy to report that Amy is doing a little better. She is alert and talking but with a nasal sound. However, Amy did agree with Ryan s posting, in the guest book, that she just has to get off of this roller coaster ride. She takes two steps forward and one step back. Sometimes two back. With Amy being on isolation, we did have to gown up and wear gloves. It turns out that Amy has an infection called VRE. (Vancomycin resistant enterococcus). What that is, is an infection that is resistant to vancomycin, an antibiotic that is used to treat systemic infections, and is a very restricted antibiotic. This is not a med. of choice to be resistant to. A Culture was taken and found positive for VRE, that is contained in her urine.  The isolation is to protect others, especially other patients, from getting this infection and also to protect Amy from getting any other infection. With Amy having a resistance to many other antibiotics, the choices are slim in treating other infections that she may get. As far as Amy s immune system, she still has antibodies to fight off infections, but like I said, choices of antibiotics are few, if she should get any infection. Brad decided that it s best for me not to bring Ali up to visit Mom today, Thursday their day together, as Ali has a cold. They will go up on the weekend, and spend some quality family time together.  Amy has been eating mostly fruit. She loves her cantaloupe!! I did bring up some potica that I brought back, for her, from Ely and she was so happy to get a little familiar comfort food. When we were there she did have some ice chips and with that experienced pain in her abdomen. She described it as a  pushing feeling.  She had such a grimes (hurtful) look on her face. A new Dr. was assigned to Amy s team. Dr. Otremba, from the Clinic in Cottage Grove . Dr. is a Hospitalist, who only sees patients in the Hospital that are referred to him by other Dr s.  Amy said he is a very  you can do it  Doctor. Amy did get up in the chair yesterday for about 45 minutes. She said it felt like 3 hours.  Pt (physical therapy) does come up to her room every day. They have to be with her at all times, when doing any kind of basic movements. She continues to say she has muscle weakness, in her legs, but the potassium seems to be helping. Transferring into a wheelchair is very difficult. Amy continues to have shaking in the hands, especially when she flexes them.  As I type this, I can see where Amy gets frustrated in this roller coaster ride.  Please God, give Amy the strength for the day.

    Ali is all excited about the weekend. Her Nana called and will be taking her out to do some shopping on Sunday. This was #1 on Ali s list of fun things to do this weekend!!! School carnival is tomorrow. It s a fun day to be with friends doing fun things .right there at school. She has been counting the days. What a busy girl!!!  Maybe Brad can get a game of disk golf in with Kurtie, Kev and Tony, before going to Craig K. going away party.  He s got a lot on his plate right now, too.  Amy, Brad and Ali's Support Guestbook   Just click on this link to sign the guest book. It s so nice to hear from everyone. There is power in words like there is power in prayer  ..    Because we are Christians we know that prayer changes not only circumstances but also the ones who do the praying!    Aims, Brad and Ali,  we all love you.

4/24/07

I wanted to do an update on Aims as there have been some changes in the last couple of days. Last night, Brad said he almost hated to come home, as Amy was so dizzy and not doing well. Her levels are at dangerous levels, again. She continues to be on IV antibiotics and Brad said the infection is located in her abdominal cavity. They did a CT scan (computed tomography, a three dimensional image) of her abdominal cavity, to investigate her acute abdominal pain. We are awaiting the results. Brad and Brian were glad of a med. change that the Dr. finally made. He prescribed a Potassium- sparring diuretic. Dr. Brad has been asking Dr. Jahnke to change this order, for quite sometime, considering Amy s potassium levels have been low, and she has been on a diuretic, which depletes(takes out) the potassium in her body.  Potassium is the predominant positive electrolyte in body cells. An enzyme controls the flow of potassium and sodium into and out of cells to maintain normal function of the heart, brain, skeletal muscles and kidneys. Our arms and legs, for example, need potassium for the muscles to move. The heart would not beat without potassium, which is also necessary to regulate blood pressure. When potassium levels are low, you become weak, as cellular processes are impaired. Potassium plays a VERY important part in the bodily functions .thus what is going on with Aims right now. Needless to say, Amy has been doing no walking (therapy); legs continue to be very sensitive and taunt. They continue to wrap her legs every day with the gauze and ace wraps to help eliminate the fluid in her tissues. She hasn t been able to sit up in a chair and has been getting these awful leg cramps. She has been unable to keep anything down and has had projectile vomiting. Things have not been going good!!!!   She is frustrated, tired and experiencing every other negative emotion; one could have at a time like this.  Brad has had to be very patient and understanding even though Aims is quite demanding at this time, and understandably so. Brad comes home to papers upon papers, dealing with the financial end of all of this. To top things off .his garage door broke yesterday morning. Some tension spring, broke. When it rains it pours!! Also heavy on Brads mind at this time, is the death of an old Boss, and friend, Jim Cooper, 49 years old, who passed away this past Saturday. Brad respected this man and admired him immensely and enjoyed working for him at Target. Brad said  This REAL man will be missed.  On the lighter side .again.    It was pointed out to me, by Stolie, (Ali s cat) that Brad must be way stressed out. He s drinking kitty cocktails, again????  J  (This Mom needs a class or two in spelling and grammar hay, I heard that)   Ali, had a great weekend and spent time with Ray. The two of them are getting to be more like sisters than friendsJ Thank God for her friends!!!!! The big thing this week, besides the school carnival, is the MCA-ll math testing.  Ali gave me strict orders,  that she has to be in bed by 8:30PM and up early in the morning so Dad can make her a big healthy breakfast. She wants to do well on this test. What a neat kid!!! Ali did talk to me, about  Mom getting bad again . I can see the worry in her beautiful, big brown eyes. It breaks my heart to see her having to go thru this.   Oh, this is all so hard to understand. This isn t fair.....it just isn t fair!!!!

It is one of the most frequently quoted of all passages from the Bible, and the one that I most

 Hope is true, at least the first seven words: "Ask and it will be given you.  I ask of you dear God, to give our Amy her health back and open her heart to your presence.  I pray for Ali and Brad to have peace within and gain strength from just knowing that you, God, are real and are with them, loving them and caring for them, every step of the way.       Please, everyone  . pray for our Amy, Ali and Brad.  In Gods name!!!!!

4/22/07

Spring is in the air, except in Ely. I am reporting that there is still 16 inches of ice on Shagawa Lake . Brad along with some of us others, still may have a chance in winning the  Ice Out  contest.  I did get all my dental work, errands and visiting done and I am back home safe and sound.  Auntie Ann, Cousin Roseann and all the  On the way up North  relatives said to say  Hi  and to give Brad Amy and Ali, big hugs and to let them know everyone is remembering them, everyday, in their daily prayer. I was with Ali yesterday and it was so nice to hear that she had a wonderful time with her Mom on her Mom s birthday.  Ali has been busy with her friends and getting excited about the school carnival coming up next Friday. Brad and Ali went shopping and bought the game,  Go Fish  for the  game basket,  that is being raffled off, on that day. Thanks again to Kari, (Ray s Mom) and Laura, (Abbies Mom) for offering to help with Ali. You are great stress relievers!!! Also thanks to Sis for making and bringing over a comfort meal. Brad said  Sis, it was very delicious and appreciated   .. Now onward to our Aims!!!! As you did read in Brads update, Amy took a few steps, backwards, on Tuesday. She was up on 8TH floor for 4 days, which is Sister Kenny, but is now down on 4TH floor, (nephrology) again. (no roommate) On Tuesday, her levels were sky high but today they are coming down again. She continues to have an IV of potassium and magnesium running. Due to the imbalance in the labs., Amy said her legs feel like they are paralyzed. She can feel them but can t lift or move them. Brad said they are very tender and taunt (tight) to touch and he has to be very gentle when he applies lotion to them. She also had a catheter reinserted again, to help monitor her output, accurately.  Her speech is very slurry and she is very tired due to the up in the ammonia levels, again!!!!  On the positive side, Amy was so excited to win $9.00 on the scratch offs, that Pammy gave her, for her birthday. Waiting to hear what she won again from the $9.00 winnings, was not the million s she had wished for. Thanks Pammy, however for making her day a little fun!!!  Also have to report that Aims is on isolation, precautions, again. I m thinking she has a staff infection going on and is on antibiotics for the infection. Brad said that Amy was very glad to see him last evening and expressed those feelings. Made him feel like a million bucks!!!!  They had a great Friday, together. They shared some smiles over Amy s birthday dinner. They were confronted with the real world, that day. The first thing the waitress said was  our specials are 2 glasses of wine for price of one and all the domestic beer for half price.  With this they looked at each other paused smiled and Amy ordered ice tea and Brad had a kitty cocktail. They both knew the decision here, really was that of  life or death. The bill came and they were even happier as they feel they got off really inexpensive and this was a nice restaurant. . This was just a taste of reality and they were both OK with it, as was Ali .  It opened the doors of communication. !!   (Laughter, acceptance and togetherness is Gods sunshine) Prayer is one of the best gifts we receive. May today there be peace within our Amy, and may she know that God is with her!!!!!  God is also with our Brad and Ali and watching closely over them !!! Keep the prayers coming !!!!!!

4/17/07

Hi all   Brad here again since Mom is hanging out in beautiful Ely , MN .   I wanted to give an update on our Aims because some things have changed since Mom s last post.  I went up to see Amy Saturday afternoon with Ali and her friend Raylin.  Amy was happy to see us but was very tired and bloated.  We only spent a short time there before we headed back out on our day of adventure all over the cities.  Yesterday was Amy s 36th birthday. Thank you very much for those of you who visited Aims on her big day and for all the nice birthday wishes that you mailed, called, e-mailed or posted on here.  Amy knows of all of them and was touched.  It was nice to see Pammy in the room when Ali and I came in.  We had a beautiful day to go wheeling down 7th street to go to the Downtowner restaurant for her birthday dinner.  Amy had the shrimp pizza while Ali had mashed potatoes and onion rings and I had a huge chunk of steak.  Everything tasted great. Even the free birthday apple cobbler that we all shared.  Amy was a bit tired after all of that and seemed somewhat spacey. But that s how we all get after a big meal.  She s still having a real problem getting up to go to the bathroom by herself so we helped her out a few times.  I m sure Amy slept like a baby after Ali and I left.

Today (Tuesday) was another day of set-backs.  When I showed up today, Amy was mostly unresponsive and said that she wasn t alright.  The nurse mentioned that they were going to move her to 4500 again so she could be monitored more closely.  DAMN!  Not again!  It s like we re right back at square one again.  She came in on 4500.  And now after moving 8 times, she s right back there again.  Her legs, feet and abdomen were severely bloated. Her ammonia level was back up to 100 (was at 40) and her Potassium was real low again.  This isn t a good thing at all.  I m guessing that the newly prescribed water pills had a direct effect on the kidney thus lowering the potassium.  Here s a link to show what Potassium is and why it s so important to our bodies. Especially our hearts. 

I m pretty bummed out by today s events and feel I need to start helping with the monitoring and treatment again to keep things on track.  I feel that all the doctors and nurses and aids are simply wonderful, but they seem to be more focused when they know someone who understands what s going on keeps questioning them and keeping things on track.  I know not to bug them but I just need to know what s going on every step of the way.

Ali will be going over to Abby s house today and Ray s house tomorrow after school until I can pick her up after work.  Thanks Laura and Kari!

And thank you all for all the well wishes and support.  It s fantastic to see so many people offer to lend a helping hand or say a kind word or two.  It s all very much appreciated.

4/13/07

Just wanted everyone to know that I will be leaving for Ely on Saturday, so I wanted to do an up date on our Amy before I  Head up North  to Gods country!!! My dentist just happens to choose to still live up there and I hate change, so he gets me home at least 2-3 times a year. I thank Laura, Abbie s Mom, Kari, Ray s Mom, and Sis, for backing me up, and taking care of Ali, while I m away for few days. (Brad appreciates it big time, and thanks you a million times over!!!)  Again, if anything pertinent takes place, I m sure Brad will do a posting or I will catch you up on things when I get back home, on Thursday, April 19TH. Amy has been so busy in therapy. They meant business when they said  we are going to work you and work you hard.  The ace and gauze wraps, continue to decrease the edema in her legs. Monday, April 16TH, is Amy s Birthday. Please do a posting in the guest book on Brad s web site. Link Of The Week (Amy Updates - Thanks Mom & Kurt)  and wish Amy a Very HAPPY BIRTHDAY!!!  I know she would love to hear from you!!  Brad was lucky enough to run into Dr. Jahnke, the Nephrology, (kidney) Dr. about 8:30PM on Wednesday night. Dr. has been a hard one to pin down. Amy has concerns, of why she is lacking so much energy and also why she is having such a problem with walking.  Brad was able to shoot questions at him and had some of his questions answered. Brad wanted to know the whys and what s from the days gone by and answers to where we are going, now. One thing he did forget to address with the Dr., were these cramps Amy is having, especially in her hands. She will be playing a game with Ali and Brad and they have to stop and Brad has to rub her hands to release the cramp. Knowing him, he ll find out tomorrow. First the reason for taking Amy off of the fluid restrictions and stopping the lactalose was to JUST see if the liver or Kidneys would work on their own, that s all. Her labs were high, but stable at that time. Dialysis was stopped for over 1 week so that was the reason for the lines to be pulled. The site was looking like an infection could have been brewing, at that time, also.. Now ..See if you can follow the following:  Lab. work: bun was 70-80 when admitted on The 6TH of February. (Increased BUN (urea nitrogen) levels suggests kidney function impairment.) Her highest range was back when they discontinued her lactalose and that was 100. Today she is 40. Norm is 6-20 mg/dl. The other lab. In, were the creatinine levels.(indicator of kidney functions) Norm is .7  She was at 9 when she was first admitted. Today she was 2.5. Even though her creatinine levels are still up, Amy is very coherent because her kidneys are functioning better. Dr. stated that the plan of action at this time will be (1) continue with labs., but more often, and monitor more closely. Including the ammonia levels.  (2) Add a diuretic (water pill) to her list of meds. (3) Prescribe magnesium to lower sodium levels and continue to be on a low sodium diet. (4)Meds will be adjusted accordantly and staff to act on findings. This is a new phase, in Amy s recovery, according to Dr. Jahnke. Dr. stated that it is salt water sitting in the tissues, (of her legs and tummy, mostly) that the liver, is not letting the kidneys put out.  He reminded Amy that she will lose more fluid while laying down and elevated, than down in therapy. Its one of those d- - if you do and d- - if you don t. So Amy said it nicely    Lets see .I have to pee more and drink less.   I really don t like that.  Dr. said  yes, but this is the plan of action.     .   After the Dr. Left, Amy shared with Brad that there are 2 things she is tired of hearing about, and finds very irritating (1) The weather and (2) construction on the 8TH floor and how the nurses don t like working on this 6TH floor. . With that, a worker did share that it looked like 8TH floor would be ready, and she would be moved up, in about a week. Amy also shared that she thought that it looked like Brad was gaining weight. He did share he has been eating well and with that he thought it best he head for home in the non-mentioned snowy, icy, 31 degree, cold, weather.     .(smile)     Ali made this Grama supper, tonight. A recipe, of her very own, that belongs in every kids cookbook. Rice, cheese and butter, straight from the kitchen of  Ali s Restaurant.  It was sooo delicious!!!!  One reason behind this soft supper was that Ali lost her 13TH tooth, after school. She was all excited as it came out without much pain and also she was sure she was getting another $4.00 from the tooth fairy. She lost her 12TH tooth, only 1 week ago, and made a bundle of cash that night. She was the champion in bowling, playing with Jorren s (Kevies) wii, ( a  you do the real moving,  computer game) bowling game; we just might hit the bowling alley when I get back from Ely, so she can show off her new found talent in bowling, and spend a few of those dollars.  Before bed, tonight, Ali wanted to call her special NaNa and wish her a  Happy Birthday . We put on our American Idol, singing voices and sent them, via phone waves, to NaNa on her special day!!!!  Happy Birthday, to you, Brenda, from all of us!!!      Well HAPPY BIRTHDAY TO OUR AMY!!!!  AND WE WISH YOU MANY, MANY, MORE HAPPY, HEALTHY, BIRTHDAYS!!!!        On this your birthday,(Monday, April 16TH) I pray for smiles and sunshine, for warmth and tenderness and many unexpected moments of joy and laughter.  I pray for ease of communication with those you love and the medical team, and a sense of satisfaction in all that you have accomplished!!! Above all, may you be secure in knowing of God's constant love and care for you, personally.  But most of all, I pray for peace and health for you, Aims!  I love you . Carol /Grama

4/11/07

With Easter Sunday behind us,(not to forget, however, we are to live everyday like it is Easter.) all the colored eggs found and the bunnies back in their bunny holes, its time to get back to our everyday, routines. Ali received so much from the Easter Bunny, it looked like Christmas. No wonder the Bunny left behind a half eaten carrot and some of his bunny fir, he was WAY busy and in a Big hurry!!! Now for the update on Amy and her day pass.   Amy had a very wonderful Easter Sunday. She ended up not going to Majors, but instead went to  The Green Mill  down on 94 and White Bear Ave. Brad did say it was difficult for Amy to get in and out of the car, mostly due to the ace and gauze wraps on her legs. They did bring a wheel chair with but decided to use the walker in the restaurant. Amy was able to spend a couple of hours with her family. Gail and Clint were down from Holyoke, Mom and Deano, Karen, Brian, Lexie and Brielle, Maryanne, Pammy and Danielle, Brad, Ali and Amy made a nice full table. It was so wonderful that she could spend Easter and celebrate her birthday (April 16TH) with people that she loves. The restaurant had a chocolate fondue fountain that Ali found very delicious and inviting, as did everyone else. The food and company was at its best. On the lighter side of things, I might share Brad s adventure of helping Amy to the bathroom. Luckily he knows how to take over this room in time of a  like now  emergency. After taking a slow but sure walk, clear across the restaurant, right by the buffet table, with Aims using the walker, he proceeded to open the Women s 3 stall, bathroom door and hollered in    MAITENANCE  and clicked the light off and on several times.  ANYONE IN THERE???  Coast was clear, for him and Aims to go in, together.  He put a chair in front of the door (kinda like at Grandma, Ely s) and took over the bathroom. After all was said and done, they were walking out, and they bumped into Brenda and Gail. They, hadn t known where Brad and Amy had gone, but at this time were to late to give a willing, helping hand. This was quite an ordeal, and to get back seemed like a mission that was impossible, so Brad and Amy and Ali went out the employee s entrance after saying their goodbyes and went for a Sunday ride. They enjoyed a few laughs together over thisJ May you always have enough! (HUMOR)

  Brad drove around for about 2 hours, stopping at every scenic overlook, (with Brad being a medallion hunter, he knew all the cool scenic spots) taking pictures, while Amy and Ali took a nap in the car. Amy said to Brad,  don t be offended if I fall asleep, it only means that I m really enjoying myself.  J Amy s attitude was positive thru out the day. Amy was back in her room at the Hosp., ready for a nap, about4:30pm.  This day was very tiring and yet very therapeutic, just being out and about!! Brad and Ali joined all of us over at Kev, Jor and Sheri s to finish off their Easter, with more food, laughs and wii. Happiness is: Being with your loved ones on special days!!!   Amy was up and ready for therapy, on Monday. She was very tired and did have a bout of an upset stomach. Her Monday was a full one with therapy. Today, Tuesday, They also had a lot of paper work that has to be filled out. The Hospital bill is reaching a point where a millionaire would have worries. Amy is having a good time making Ali treasures in her craft classes. Amy has done glass etching and beaded bracelet. These are quite an accomplishment, as Amy is still shaking very bad, especially her hands. . Brad plans to have this addressed soon, also. It would be nice to get some answers.      May you trust God that you are exactly where you are meant to be.  May you not forget the infinite possibilities that are born of faith .... Bless our Brad, Amy and Ali  Keep all of your prayers coming there way !!!!!!      ALSO  ..  "Lord please; take care of the person who is reading this message, their family and their special friends. They deserve it.  Carol

4/8/07

God is good all the time...and all the time  God is good!!! On Easter, we celebrate the Resurrection of Jesus, and  if we believe, we will have eternal life.   Christ has died Christ has risen...Christ will come again.   Have a wonderful Easter Celebration, with family and friends.  Amy has a day pass and plans to spend a wonderful day, with Brad and Ali, at Majors, sports café. Yes, Ali won a Majors, coloring contest, again, this Easter and received a gift certificate, so Ali was all excited and thought she would treat her Mom and Dad, for Easter Lunch. She is definitely the artist in our family!!! Congratulations, Alicia Rose. Mean well, an update.  Amy continues with daily therapy and this last week she tried to do  steps . It was a greater challenge than she had expected, thus the reason she is going out to Majors for Easter and not spending it at Kev, Jorren and Sheri s. We will all miss her and SOOOO wishing she was with us, as usual. Amy is back on fluid restrictions of 1,500 cc. A cup is 240 cc. This is not easy; to keep in check. Amy does, however, understand the importance of the restriction.  Her daily schedule is a very demanding one. She has bedside OT (occupational therapy) at 8:30am. A therapist comes in to help start her day, bathing, getting dressed and such. However, Amy, did say, that she receives breakfast about 7:00- 7:30am, so when they come in at 8:30am, she is ready to get her day started. At 10:00am, again at bedside, the nurses apply wraps of gauze and ace wraps, from the tips of her toes to her upper thigh, area. This wrapping procedure, take one entire hour. The reason for the wraps, is to get the lymphatic system working. It helps get the excess fluid out of her tissues and into her circulatory system. Amy said that this procedure eliminated 14 lbs. of fluid from her legs in 3 days. They are doing their job!!! At 11:00am, it s physical therapy at bed side, for 1 hour. Lunch at 12:00 noon. Physical therapy, again, at 2:00 pm, off the unit, working on walking, weights, etc. At 2:30pm, occupational therapy, again, off the unit. Also, there is time allotted for crafts. On Thursday, Ali s time with Mom after school, Amy did an etching on glass, with a magnet on the back, for Ali. Ali was so proud and showed all of her friends. Dinner is served at 5:00pm. Brad comes up after work, about 8:00pm, for a visit and then it s time for Amy, and Brad, to call it a day. Amy has to sleep fast as she has to get up on time, to her alarm clock, to start a new day!!!!  WOW !!!!  That is definitely a busy day, for our Aims!! Lab. results are in, but the ammonia levels were not drawn, for what reason, we don t know. Brad is checking into the matter. All for now, as the Easter Bunny is out and about, and waiting for  lights out . Oh, yes, Ali attended service, at my church, Woodland Hills Church , with me on Good Friday. She met and talked with Senior Pastor, Greg Boyd (graduated from Park High in Cottage Grove ,Mn.) and many of my friends who are praying for Amy, Brad, Ali and all of us. I was so proud of her. She had her game boy with her and she never even took it out of her purse. That tells you how powerful Greg is, and how he reaches out to all ages. 

Heavenly father, I pray that as you had lifted up our lord on resurrection Sunday, You will come upon our Amy, Brad and Ali  and lift from them all the worry and stress and give them faith and trust in you and your plan. The love of God is like the ocean, you can see its beginnings but Not its end.

4/4/07

I came home to pickup my mail so thought I d post an update on Our Aims.   Well, first of all, everything went off as Brad planned, for their Anniversary. Brad did spend the night. They watched movies, ate by candle light and just had a great time.  Ali made a card, by hand and surprised both of them with it. It was a great day!!!  Brad said that Amy felt well, health wise. She felt very, very special. No news on the labs yet. Amy continues with therapy, every day and things are going slow .but sure.      Ali is having a great time with Jorren, her cousin. They love to play the new Wii games. We are off to make a visit to the Easter Bunny at Maplewood Mall. HAPPY EASTER EVERYONE. God Bless Us all and keep the prayers coming, Brad, Amy and Ali s way!!!   

God grant me the Serenity

 to accept the things I cannot change,

 the courage to change the things I can

 and the wisdom to know the difference.

3/31/07

Happy Anniversary, Brad and Amy, April 1, 1994 !! Married on a beach in Kauai , Hawaii , 13 years ago, on that day.  Love was and is in the air . I know Brad has been working on a surprise for Amy. The romantic, that he is, has been talking with staff, to see if it would be possible, to spend Sunday and Sunday night at the Hosp. with Amy, their Anniversary. How awesome would that be???? He has a candle light dinner planned, with all of his fixings. It s spending quality time, together, that makes this day, special, no matter where you have to do it. Everyone, cross your fingers, that he can pull this one off !!!!! (Remember, this is a surprise. Don t say a word to Amy!!)  An update on Amy, as Ali and I saw for ourselves, the nice big room she has up on the 6TH floor. (Not 8TH floor)The view is awesome and very entertaining. Ali and I actually played  I Spy  looking out the window.  Amy was tired on Thursday, as she had a full day of therapy. They keep her coming and going, as they want her to get up and around by herself as soon as possible. Amy is able to transfer to and from the wheelchair, slowly, but by herself. She wants to do as much for herself as possible. After I left, Brad said that Ali enjoyed being with Mom and they had a nice night together, playing, Old Maid.  No lab. results in yet. I would love to forget, but I guess we must not forget, that Amy is still dealing with this damaged liver. No report on how that is coming along at this time. The following is a site I found very interesting and informative. You might want to check it out.      http://en.wikipedia.org/wiki/Hepatic_encephalopathy 

                                                                           I will be staying with Jorren, my Grandson, thru the nights, April 1-April 5 at Kevie and Sheri s house, as they are going to Cancun . I will be spending my days with Ali at her house, as it is spring break, so I may not be able to get home to my computer to make updates on Amy, until the 6TH.  No news is good news!!! If there is something pertinent to report, I m sure Brad will post an update.  In the mean time, ASAP   (ALWAYS SAY A PRAYER), and know that our God is working on the plan. Prayer is one of the best gifts we can give.  Happy 13TH Wedding Anniversary, Brad and Amy, today and many, many, more to come!!!  God Bless you and precious, Ali!!!

Happiness is; saying something nice to someone every day !!!!!!!!!!!!!!!!!

3/28/07

Today was a awesome, day for Amy and also for Sis and I, as we spent over 1 hour visiting, laughing and sharing stories, with a very positive, Amy. First the super good news!!!! Amy, was moved, to her new room up on 6TH floor!!! Hallelujah !!! Amy said Brian was so excited for her, and wanted to call and tell everyone, but Amy wanted to surprise, everyone, including Brad. Brad found her up in room 6946, (but it s on the books as 8946) in a private room, after work, tonight. (the nurse saved Amy s name ,wrist bands, from 4TH floor for Brad. He s got a whole  remember when  box in the making, for Amy, when she comes home.) There are only 6 patients on that unit and each has there own, big, room.  Because of the possible room change, 2 days ago, A new Dr., was assigned to Amy s case, and is taking a different approach to the up in labs. This Dr. is going to go on strictly how Amy is feeling on the day at hand. She (the Dr.) is going to have labs. drawn,  tomorrow and then go from there. Amy is not on a fluid restriction at this time. Amy s biggest complaint, today, was pain from the hardness, to her tummy, legs and feet, due to the fluid retention. She also said a fine red rash was appearing on her thighs. Brad and Amy have found and have, a trusting relationship, with one particular, special, nurse, (LPN but a newly RN Graduate) by the name of Deb. She has been by their side, since Amy came out of ICU. She spends time talking with Amy and holds back no punches, on the seriousness of this illness and the addiction of alcoholism. Brad appreciates her professional skills and talents and said her support goes far beyond the call of duty, to both Amy and him!!! Deb has told Amy that she can control her own destiny. It s all up to Amy !!!!  It turns out, the new Dr. and Deb, are both from IGH and live only blocks from Amy and Brad.  When you live close together, you stick together!!   like glue!!!     So  tomorrow is the first, wonderful, day, of Amy s new life. It is going to be very demanding up on 6Th floor, with  the 3 hours + of physical therapy, and Amy admits, that she is very scared and worried that she won t be able to do it.  It s one day at a time  I know, she can do it!!!! When her self confidence, kicks in, it won t seem so difficult.   It is Thursday tomorrow and Ali,s day to spend some one on one time with her Mom. She is so looking forward to that time. She has 2 teddy bear suckers that she will surprise her Mom with. Brad, Amy and Ali make three!!!! It s their family night together!!!  God is blessing, guiding and watching, over them, always!!!!!!!  We love you.    God's part is to give us strength, our part is to do the work and the part of others is to encourage and support each other.   So we need to do our work and allow others to help us.  And we MUST trust God to provide all.        Carol

3/27/07

While, Amy was unable to be moved into her new room, up on 6TH floor, today. She had a set back. The Dr s had taken Amy off of her fluid restrictions and also cut back, half, on her lactulose. (The med that helps absorb the fats, and keeps her levels down) Due to this, Amy s ammonia levels have been higher than they ever have been. She complained of pain to her tummy and it was quite distended, again. She was feeling down, and depressed, so Brad took her off the unit for a long walk and sat outside to get a smell of the fresh, warm, air. Amy had moments of crying as she wanted all to be well, right this very moment. The road appears sooo long!!! Just knowing you can t come and go as you please, can be very depressing. Amy will not be able to be moved to a different station until her levels come back down. Brad said he assumes that they will put her back on fluid restrictions and up the lactulose again. Amy has been enjoying doing crossword puzzles. It keeps her brain active!! Amy needs a full dose of prayers, at this time, again, friends and family!!! They did say Amy would have good days and bad days. I like the good days! We have to be patient, tho,  as Amy, will have more good, than bad days, real soon. Mean well, back in Ali s world, Ali said,  I had a good, fun, day today . This was after her friend, Abbie and her, spent time at Laurie s, Scott Highlands , middle school, for a swim meet. They both feel that 8TH graders have it made and want to be that age, like right now!!! Oh, to be a child, again.  When Brad came home from work, I could tell he had a lot on his mind. Life is not easy at this time.  He gets so worried, about Amy, and I know he wishes he could make everything, all right!!! He hates to see Amy in pain, and like Amy, and Ali, wishes that the road to health and happiness wasn t going to be sooo long. They are walking the road, a step at a time, every day, making it a shorter, journey, every day! Hang in there Amy, Brad and Ali, there is light at the end of the tunnel!!    God is on our side. God Bless and keep the good days coming!!!!

3/26/07

Just a quick update as things are pretty much the same in Amy s world. I did talk with Brad last night and he said they found a sky way that was wide enough to sit at tables and enjoy the view of the cars and helicopter landing pad. It s their secret getaway, now. They sat there as a family and enjoyed the day, together, even tho we had threatening severe weather storm warnings. Amy is hoping that she will be moved today, to 6TH floor, an interim to Sister Kenny, as an inpatient and not 8TH floor as planned, as 8TH floor, where Sister Kenny is, is under construction, at this time. Go figure!!! When Amy is moved to 6TH floor, there will be some changes. She will, more than likely, have a roommate, will be washing all of her own clothes, right there on the floor and doing her 3 hours of physical therapy. She is going to be a busy girl!!! They have a  check off list  and as she can master these chores, they are marked off and Amy is taking steps in the right direction, down this road of recovery, bringing her closer to coming home, healthy and well!!  It s going to be a proficiency test. Amy will have to get up to an alarm and start her day off like she would in the real world. Amy is so excited about all of this, but when she looks at the whole picture she said,  It s going to be sooo long . We have to encourager and support her, as its one day at a time. She needs us, now!!!! She can do it with the help of our thoughts, prayers, cards and encouraging words. We re behind you 100%, Aims!!!  Ali was all excited on Friday as Dad got her bike down!!! Have wheels, will travel with her friends Abby, Ray, Jazz and Natalya. (They are Ali s support system)  Spring has sprung!! Ali s spring concert/play was wonderful and very entertaining. We had front row seats, so we could hear Ali s, beautiful, strong, voice. Brad is busy at work, home and everywhere. He s a pillar of strength!!!  Keep the prayers coming in.   Being happy doesn't mean everything's perfect. It means you ve decided to see beyond the imperfections.     carol

3/23/07

I m all excited!!!!  Kurtie set up this link so that we would all be able to post our thoughts and feelings to Brad, Amy and Ali. Please, everyone, use it, they will all be copied for Amy to read, while in the Hosp.    http://users3.smartgb.com/g/g.php?a=s&i=g34-03128-3e   (Link to Amy s support guest book)   http://www.tegantvoort.com/amy.htm  (this is the link to Amy s page on Kurties web page.) Thanks, Kurtie for going thru the trouble of setting this all up. You re the best!!! Well, I do have an update on our Amy. I am so excited!!!! I brought Ali, up for a visit today and stayed for a bit. Amy is unbelievably, positive with her thinking and attitude. I asked how her rash was, that she has been doctoring for the past 2 years. She said it is all gone, as the cause of it was from the toxins being in her body. It s to bad, the Dr.s didn t put their finger on that years ago. She said the thing she is most excited about, was putting a swimming suit on, that fits and swimming in the pool with her Alibababs and Brad. She also said now that she isn t going to drink, anymore, she won t be back in the room, by herself, but out with the family in the pool. How awesome is that??? She also stated that she wants to cook healthy, eat healthy and do exercises. Brad also promised, Ali, if she does her exercises twice a day, he will get her a two piece bathing suit. Amy said her and Ali can exercise together. How fun!!!!!!. This brought a smile to Ali s face!! Amy, also said, she would like to get church into her life, also. Praise the Lord!!!! I know just the church, that would accept her with open arms.  Amy also said, she can talk smart, but doing all these things for real, is a different thing. I told her, the first thing she has to do is make a plan, and that she has already done. The rest is one day at a time!!! Ali  spend, some one and one time with Mom and had supper together. It was fun just to hang out together and watch TV. Check out the picture, I sent as an attach.  Take note of the smiles on their faces. Thank you God!!!!! There is,  Peace in the Valley,  at this time  .Keep the cards and e-mails coming in. Address is:   United Hosp.  333 Smith Ave N. St. Paul , Minn. 55102Room 4534 Amy TeGantvoort    cluemaster@comcast.net   This is Brads E-mail address. Home phone # 651-306-9386 Home address: 8345 Copperfield    Inver Grove Heights , Mn. 55076       We love you, Amy, Brad and Ali. We will continue to have you in our thoughts and prayers

3/22/07

Sis and I spent over 1 hour with Amy, at the hosp., yesterday, and what an awesome visit it was. I can report today, what we had observed for ourselves. When Sis and I entered the room, Amy was fully dressed and sitting in her chair. The speech therapist was working with Amy. After some time visiting with Amy we could report that it was very apparent that Amy  has all her marbles . Sis even gave her some A+ s on her correcting things I had said, such as what time the St. Patrick s Day parade, started, on Saturday. Her memory appeared to be right on track, on everything we talked about.  Amy had said they were asking her  stupid  questions to test if  Is she with it , skills. A few questions were (1) what would you do if you locked yourself out of the house?  Amy s answer:   Call Brad  (2) What would you do if you fall in the house? Answer:  call Brad  (3) What would you do if the dishes needed to be done? Answer??   call Brad  After a few laughs, they said, ok, what steps do you take to brush your teeth??? Amy did stop to think .and said the correct steps without, answering . call Brad. Was cute!!! Aims skin color is pretty much back to normal. We knotted some shaking to Aims hands, tongue, etc and Amy said that is due to the toxins still in her body. Her speech appeared to be of a nasal nature, more than a slurring. It appeared to us to be of a sinus nature. Amy thought it was due to the fluid restriction of 1,500 cc, that she is on. She said her mouth is always so dry, that she even has prescription, saliva drops, to use in her mouth, when her mouth gets to dry. The whites of her eyes appear to be slightly yellow and her eyes, themselves, appear to have a slight rounded protuberance. Amy did get her new glasses and being new to her face, plus her weight loss, gave her a different, but so pretty look. Amy said now she is able to watch some TV, but did agree when reminded, she wasn t up to it before now.. anyhow. The therapist and Amy, said, word was out, but not in writing yet, that Amy did qualify for Sister Kenny. It s a 99.9% sure thing that it s a done deal. I was waiting for a 100%, sure thing,  before I sent this update out, but I know everyone is waiting to hear how Tuesday went, and paper work can take days to get approved. On Tuesday, Amy, said she did her 3 hours, up on the unit and down in the gym and   in a quiet voice, said, to Sis and I,  I even, kinda, like going to the gym to do exercises  NOW that s a first for our Amy!!!!  Love that positive attitude!!!!!!  There is a God!!! Ali was soooo excited about this when I told her!!! She would smile when telling people about it..Amy was so excited, as she would be transferred to the 8TH floor, where her extensive daily physical, occupational therapy will take place. Like I said a few e-mails back its going to be more like a home than like a hosp. setting. They asked Amy if she remembered how to fry an egg. The look on her face was to die for. With that , Amy did say  I guess some of the people are worse off than I . I have a feeling she may be cooking for the staff ha ha. Amy s mental status has improved sooo much, and her attitude is, so much more positive, on what has to be done to get better, that I think they feel she is ready to start the road to recovery. She no longer is focused on  Just wanting to get out and go home . She knows she has a road to follow!   .Now about the liver They are not sure, yet at this time, if the liver is going to regenerate itself, but its best to be working on the physical side of Amy, while her insides are working there miracle ways out. Time will tell and prayer will be helping us in this department. Again, God is on our side, so I have faith all will be OK!!! Pray pray .pray!!!!!Amy is eating well. While we were there she said she orders a fruit plate almost every day. She loves her cantaloupe with cottage cheese. She also had bread and butter, sherbet, and a short can of sprite, (her most favorite besides milk). After reading this .can you all believe how well Amy is doing.???? She has been thru a lot!!!  It s a God thing!!! Thank you everyone for your prayers.  We have the power on our side!!!!!!!  Ali is doing ok. She is all excited about her choir concert tomorrow, and looking forward to spring break. She had a project in health, the other day and had to write things down that caused her stress in her life. Her list is pretty typical of any 9 year old but some of her answers weren t. Mom in the hospital and someone dying were on her list, along with friends, school, homework, etc. Ali is very open with her feelings and always has an open ear, from Brad. They are an awesome team, and they too,are even working on everyday issues, among themselves, to make life happier, when Mom comes home. Brad is holding up OK. I like when he gets some time to do, Brad things, with his crew and friends. It s healthy, for him. Oh yes, Amy said she did well at the visitation, of her Grandpa, but did get tired. It was nice to get out for a few hours, and be with the family. Keep your prayers coming their way. They are working, and working in full force. Proof is in the happenings.  Remember to keep the support e-mails coming in, and stop in to see our Aimes!!!. They are very much appreciated and needed!!!!     God Bless Amy, Ali and Brad and all of us to be there for them whenever we are needed!!!!!  GOD IS GOOD!!!!!   carol

3/19/07

Just a quick update on our Amy. Brad did get the OK, to take Amy out to her Grandpas visitation, today, and all went fairly well. Amy had  thrown her back out  on Friday, so we weren t sure if it was going to be possible. Brad did have to use muscles he didn t know he had, to transfer Aims in and out of the car and the wheel chair, was a tight fit in Brads Caddy, but he was just glad, Amy, could get a breath of fresh air and be surrounded by her family. It was also good for Ali, too, to be with her many, fun cousins. Brad and Ali also stopped at Applebee s and picked up a salad for Amy and a root beer pop, and went to the cafeteria at the Hosp. and had their first meal together, in a long time. Ali was so excited about this, when she told me about it!! Amy was tired and glad to be back in the Hospital for now. She has accepted the fact that this is where she has to be. When back, Brad, Amy and Ali watched the Craig Ferguson, Monologue, that Brad posted on his site. It s always nice to know you have company, with your addictions. Life is not easy, sometimes, but workable.  Everyone have a good week and continue to pray for our Amy, Brad and Ali.  My  prayers go out, to all of you, for all of your support, health and happiness. As you know .I believe there is awesome power in prayer!!!!!!  God Bless all of us!!!           Carol

3/17/07

Happy St. Patrick s Day to everyone and Happy Birthday to Brad!!! A little update on Amy as Brad had some news to report last night. On Tuesday, Amy will start going thru some testing to try to qualify for Sister Kenny there at United Hosp. They will start at 11:30 with physical therapy, such as walking and then at 3:30 they will be taking Amy down to the gym to do  Gym  type exercises with weights and such. They will be working toward the 3 hours a day that Amy has to do to qualify for Sister Kenny. Amy also has to work toward taking steps toward getting a job, such as resumes and such, which is occupational therapy and also she did qualify for speech therapy. She has all the  brain  things down such as counting backwards by three s, but her speech continues to be slurred.  Amy s days will be full, to say the least. Amy is still on fluid restrictions. If the liver can process the fluid, the kidneys can put it out  but the liver continues to not be able to handle it, thus the extra fluids go into the tissues of her body. Amy s tummy continues to be distended, but a little better. Brad received the OK for Amy to save all of her fluids today, so that she can have some of her traditional shamrock shake from McDonalds with Brad and Ali.It s a must for this family, on Brad s, St. Patty s Day birthday. Brad and Amy did spend some time talking about the fact that Amy will never be able to have another alcohol drink the rest of her life. They talked about ways to fill that void. It s going to be a little easier, as Brad and Amy are best friends and they will choose ways, together, to avoid temptations. This is not going to be easy, but they will need the help, of all of their friends, to keep Amy alive!! The positive side of this, is a wonderful, everyday, normal, life, that is so deserving of Ali, Amy and Brad. Have a great Birthday, Brad, and enjoy your Shamrock shake, Aims.    I Love You so much and I pray for our God to guide you, support you and watch over you, and make you well and happy, real soon, so that you can come home to your Brad and Ali!! They love and miss you sooooo much, Aims!!! XO       MOM 

3/15/07

The 6 of us friends, had an awesome, busy, relaxing, fun vacation in Sunny Ft. Meyers Florida. I thank everyone for the  Welcome Home  e-mails. Mean well, back at home, is reality. I did talk with Amy, Brad and Ali,  from Florida, so have been updated on all the happenings, and was happy to hear that everyone pulled together and kept life going in the right, positive, direction .THANKS EVERYONE!!.The latest up date is that Amy s grandfather (Grampy) passed away on Tuesday. This is Amy s Dad s Dad. He is 80+ in years. Brad is trying to make plans to see if Amy can get a medical pass to leave the Hosp., with him and Ali, for a few hours, to attend the services here in St. Paul .  He feels that the fresh air would be a very positive move for Amy and family time for them. We are awaiting that OK. My thoughts and prayers go out to the entire family of Grampy .Ali,  her math class, and teacher,  made pop out get well cards for Amy. Amy enjoyed opening them, and I m sure, really enjoyed their 3RD grade artwork. A touch of sunshine!! Medically, Amy is stable at this time. Meaning her lab levels are still very high, showing that her liver is not processing the toxins (ammonia) in her body, yet, at this time, but stable. . She was receiving doubled doses of lactulose, to put fluids into her system to flush it out and it appeared to be helping.  They then cut the dosage in half, but the levels went back up. To keep the electrolytes balanced in this unique body of ours is a real God thing.  Forward steps that will be taken: Amy, will continue to be monitored closely every day. It is too early, to tell just how bad the liver is damaged at this time. With no alcohol, continuing to damage it, we will be able to see in the coming months ahead, if the liver will be able to rejuvenate itself. On her side, is her age, God and a whole bunch of awesome support from family and friends.  Amy is wearing street clothes. Nothing like being able to wear your own clothes. She is able to walk 150 feet with the help of a walker.  Today she was going to try to walk the whole unit, with the walker, with the wheel chair close behind. The rehab. Tech. is very protective with Amy and doesn t give her too much rope to just take off and do it Amy s way. The magic words are  a little at a time . Brad did take Amy to an adjoining Bldg. to get fitted for new eye glasses. She will get them in a week or so. The Hosp. lost the first pair during one of the 6 room changes.  With the body fluid levels, unable to be balanced, some days can be up and down with emotions. Yesterday was a irritable day for Amy. She wanted to go home and kept asking  if I do this, will this get me home?  She also has been very shaky and her speech seems to be slurred, more at some times, than at others. Amy at times, will, what appears to us, to have a thought in her head, and appears confused to those with her. She was convinced yesterday that she was going home and she was busy packing her things. Brad has to reorientate her to reality. Brad also feels that Amy feels she is just  taking up space,  and just  to well  to be there, on that floor. Which brings up a point. Brad stated that Sister Kenney, there at United Hosp.  Is thinking about reevaluating Amy again to see if she might fit into their program, when all the financial and availability is settled. They took a tour of the facility and liked it very much. It s an attempt of trying to be like home. . Kitchen, living area and able to wear own clothes, at all times.  At this time Amy is not medically ready. Brad did ask what would the program consist of and the therapist said that they would do physical therapy, teach Amy to care for herself and to relearn to do the basic housework, like laundry, vacuuming and dishes. Basically everything she did before she came to the Hosp. On the lighter side  . With hearing that, Amy, (with a smile on her face) said she now knows why Brad wants her to go thru this program. Brad is saying .score!!!! J    Ali has been doing fine. Brad is very positive and truthful with Ali. They are quite the team, but desperately missing one of their main players, MOM!!!   Friends and homework, keeps her busy.  She misses her Mom every minute of everyday, as no one can fill Mom s shoes. Amy has been calling every morning, touching base, and making sure Ali, is up and ready for school. Brad, also misses the love of his life. Patients is a virtue at this time   .It s going to be a special weekend. It is Brad s birthday on March 17TH, St. Patrick s Day, on Saturday. Remember Brad on his birthday cluemaster@comcast.net , and remember Amy.(room 4534) They love and need all of your support!!!!  God Bless and watch over, Amy, Brad, and Ali.  ..  God didn't promise days without pain, laughter without sorrow,  sun without rain, but HE did promise strength for the day and comfort for the tears, and light for the way.  Chop Chop, Aimes. XO!!!! Happy Birthday , Brad!!!!!  MOM  XO   (Carol)

3/13/07

Hello everyone. Brad here again.  Mom is on her way home from sunny Florida as I type this.  It sounds like she had an awesome time.  And only 800 pictures so far. I'm sure many of you might get to see one or two in an e-mail.  ;-)

Amy's mental condition has improved much since my last post.  She still has a slight slur in her speech but is able to communicate easily.  She has physical therapy every day now with increased mobility with each session.  Her lab numbers are still very high which is keeping her in the hospital.  Her inattentiveness last week was partly blamed on a bladder infection rather than just her high ammonia level.  She was given some Cipro to get rid of it. That's the stuff they give for Anthrax (not the band, the disease - although I'm sure it would work for both). She's now taking a bunch of other meds and they've doubled her dose of Lactulose to help bring that darn ammonia level down where it should be.

Ali & I were able to wheel Amy around the entire hospital over the weekend. We went outside a couple of times and also saw where Ali was born over 9 years ago.  Amy had many visitors over the last few days. Thank you for stopping in.  Amy is feeling better now and is rather bored if anyone else would like to stop by and say hi. She's in room #4534 at United.  I'm sure she would appreciate it.

The patient representative at United gave the go-ahead to replace Amy's glasses that were lost in the move to ICU on day two.  Luckily, the building right across the street from the hospital has an eye clinic on the 8th floor.  I wheeled Amy over there through the tunnel connecting the buildings. She picked out some very nice frames.  We hung out in the elevator lobby looking down on her room across the street talking for awhile.  She looks the best that she's looked since she's been in the hospital.

I want her home sooo bad.  Ali & I both do.  Chop Chop Aims!

Thanks to Sis, Laura (Abbie's mom) & Kari and Dave (Raylin's mom & dad) for helping watch Ali when I was at work over the last week.  I knew she was always in good hands.

3/9/07

Hi all. Brad here.  Since Mom is enjoying her well deserved Florida vacation, I've decided to provide an update on our Aims.  The last few days have been a roller-coaster of sorts.  On Monday, Amy & I met Brian in a Hastings court room to have it determined if she was going to go to a lock up state facility, such as Anoka or a less restrictive residence to obtain treatment. Amy did enjoy the ride down and the chance to actually feel and smell the outdoors for the first time in a month.  Although she was a bit confused on what the date was, she conducted herself well when signing all the papers and agreed that she needed help.  Her lawyer agreed with us in that Amy currently didn't need the 'full commitment' and would settle for a 'stay of commitment' provided she agreed to a list of requirements put forth by the state.  Items such as abstaining from alcohol, following doctors orders, adhe ring t o treatment facility rules along with following up on the after-care recommendations were some examples of what she needed to agree to before she was granted the stay.  Amy did agree to each the listed items and the judge sided with us to let her attend a more appropriate treatment facility where she can visit with family and such.  Which was very good news.  Although, she needs to follow each and every requirement or she will end up in a state program.  We're all thinking positive and hope Amy will follow through as asked.  Even though the van driver was over and hour late picking us up form court, it gave Amy & I some quality time to talk about stuff other than the regular health and care issues.  Lots of warm hugs.  :-)

Tuesday was a rough day.  Amy took a big step back in her recovery.  She was pretty much out of it the entire day where people were getting worried.  her ammonia levels were dangerously high.  They tried a 1000ml enema to help flush her system but that didn't help much because it was so hard to keep in for any length of time.  So they went with the much slower acting oral dose of Lactulose instead.  This had minimal effect and she was still quite a bit groggy when Brian seen her later that day.  She was also given an anti-anxiety medication which might have played a small part in her unresponsiveness.

Amy was somewhat more coherent on Wednesday.  Enough where she could read the part in the school newsletter that Ali wrote for the third grade activities.  Plus she was able to sign a few of the many Social Security forms that were sent to the house.  I called later that night and had the nurse hand Amy the phone since she doesn't answer all that often.  We talked briefly then she just placed the phone next to her head rather than hanging up.  I then listened to the activities in her room for the next two hours unknowing to whomever entered.  I was glad to see that the care she receives when one of us is there was the same as when we aren't. Even though Aims was a bit difficult at times.

Brian stopped in during the day Thursday before he went up north to visit Grampy.  I went to the hospital after work for a few hours.  She was back to being pretty lethargic.  Her concentration level was rather low.  I was able to get her to get up and go to the bathroom a couple of times.  This has been a struggle recently.  She didn't want me to leave so I sat with her until she was fast asleep.  Ali was sleeping over at Abbies so it felt eerily empty when I went home. :-(

Mindy, the United Hospital social worker, called and said that Amy didn't qualify for a transitional care hospital, such as Bathesda, but might qualify for a more local transitional care facility.  Unfortunately, the local facilities don't provide much medical care and are designed more for physical rehabilitation.  Mindy is going to check on financing and bed availability so Brian and I can set up tours to see what is the best fit for Aims.  Amy first needs to be medically discharged before any of this can happen anyway. And that seems to be down the road yet at this point.  Only until Amy is healthy enough to leave the hospital, is she able to go to the transitional care facility.  And she needs to be physically capable to leave the care facility in order to finally enter treatment.  So you can see we still have a long road ahead of us until we totally get our Aims back.

It's Friday now and Brian briefly met with Aims this afternoon upon returning from up north.  I won't go into details but it sounds like Grampy really needs all the positive support we can give as well.  Brian said Amy was still confused but now more upset and demanding.  This was confirmed by a nurse I just spoke with. The nurse mentioned that she needed to be stern with Amy to let her know that she wasn't going to put up with her negative behavior.  Apparently Amy changed her behavior somewhat after that.  This sounds very much like when Aims first came out of the ICU a few weeks ago.  I'm guessing that this setback is going to have us go through the last couple of weeks all over again.  And that's the last thing Amy needs since she wants to get out of there enough as it is. 

Since I'm already taking up a good deal of your time,  I'd like to mention how much I (we) appreciate all of the help and support each of you has given us. Whether with prayers, cards, flowers, e-mails, web sites, tasty food, voice mail, hospital visits or helping with Ali, every type of support and encouragement is welcomed, needed and appreciated.  There are many times I break down when just thinking about how awesome it is to have great friends and family as you all are.  Especially knowing each of you have your own struggles going on in your own lives and yet take the time to think about Amy, Ali & I.  We are definitely a very fortunate family in this sense.

I especially want to thank my brother-in-law Brian for being a pillar of support for both Amy & I during this whole thing.  He's been at the hospital every day making sure Aims is taken care of and comfortable along with keeping in touch with me with 'shift' updates.  You are a fantastic caring brother BriBri.  You Rock!!

I also need to single out my Mom.  She has been unbelievable to say the least.  This lady is not only my hero but also a genuine Saint in my book!!  Mom has helped me with just about every step along this long and difficult road.  There really aren't any words that can convey how much I appreciate this lady.  Everyone needs to experience a Mother like this.  We Love You Ma!

I'll end with that and post further updates as I can. Sorry for the long post this time around but once I get going I can't stop.

Have a great weekend everyone and please keep sending your positive vibes in Amy's direction.

Love Brad

3/4/07

Due to the snow storm, I m sorry about not getting an update posted sooner. Always remember  No news is good news!!!  As some of you know, I will be leaving on vacation until the 13TH of March. I wanted to get this up date, on our Amy, to all of you, before I fly out tomorrow. I am also on my way up to visit with Amy before I leave.   Meetings with social workers and others have been taking place regarding what facility will be appropriate and excepting of Amy, when her Hosp., stay is over. Amy, Brad and her brother Brian, will be going to court tomorrow, in Hastings , and decisions will be made at that time, with a judge, being the in between guy!!  Amy does have a medical release to go to court, but I m not sure that she has the strength to leave the Hosp., right now. Time will tell!!! The Hosp. would like to have Amy go to Anoka for Treatment but Brad and Brian would like for Amy to go to a transitional care facility where Amy would be able to work a program as an inpatient, and give Amy some choices. However .if Amy does not follow the program to a tee  she will have to go to Anoka . It is all in Amy s hands at this time. May God Bless Amy at this time and be by her side. May there be physical and emotional healing and a spiritual reconciliation with God. She needs the prayers from all you loving and caring family and friends, to get her through this difficult time. To go to either facility, Amy must be medically sound, and that is not where we are at, at this time. Brad and Ali, just called and said that Amy continues to walk the unit with help, with some encouragement. She continues to have a very distended abdomen. Doctors will also being addressing that tomorrow.  You ask .Why not just drain the fluid off???   The reason is that this will cause an imbalance in her electrolytes (fluid balance) in her body.  Her lab. Numbers seem to be about the same or some even going higher, instead of going down. We have lots and lots of questions!?!?!? And its time to get some answers!!! Amy continues to be very, very, tired, so visits are totally welcomed, and appreciated, but quality short ones would be awesome. With me being gone, I m speaking from my heart, when I say if everyone continues to help Brad and Ali ,it too, would be greatly appreciated. A phone call, card, positive thinking, I guess, a just,  how the heck are you  would be just super!!!! I thank Laura, Kari and Sis for taking care of Ali when I m gone. She is in good hands!!!! Everyone has been super. Brad, Ali and Amy, say  THANK YOU, TO ALL OF YOU!!!  If there is any real important up-date s, I will ask Kurtie if he wouldn t mind passing it on. I will be keeping in touch via cell phone. God Bless everyone. Pray pray pray!!!!  Carol

2/28/07

Nothing new to report, tonight, except that Brad did take Amy around the unit for a walk, again tonight and the walk is getting to be a lot easier, for Amy. No report, yet, in regard to what steps are going to be taken next. We are still waiting on the many Dr s, to make some decisions. Brad did say that they planned to do a CAT scan tomorrow. Amy s abdomen is becoming quite distended, so I m assuming the scan will be zeroing in on the liver .  Prayers again are needed, that this test will bring us some encouraging results. We must let our God, fight for us, at this time, and just try to be still. Thus pray pray pray.  Also, please, say a special prayer for our Brad. Give Brad the right, caring, words to say to Amy, to help her get the motivation to take this journey back to a happy, healthy life style. He misses Amy, so much, and just wants everything to be OK. Some nights are long and lonely. Ali, is also missing her Mom and both Brad and Ali, need Amy back home, healthy  Ames , we all miss you!!!!

2/27/07

Good morning ..Ali and I had dinner out, with Brother Jack and Sister-in-law Sue tonight, and Ali had fun playing with the new puppy addition, to their family, Emmy, and also Teea and Chelsea.  What cuties!!! Brad went up to the Hospital for the second time again today, along with Deno and Brenda. Amy was in a bad place and needed TLC in a bad way. Amy s Dr. came in and decided to pull the dialysis line, also, as Amy has not had dialysis for over a week now. Like I said yesterday, feeding tube is out also. NO MORE TUBES AND NO MORE LINES!!!!  Amy is tube free!!!!  Being that it was Monday, every Dr. came in for a visit. All accept the liver Dr..(where the heck is that liver Dr????)    Dr. William Jahnke, the kidney Dr., did state that Amy s liver is in very bad condition, for how young she is. The reason why the kidneys are having to work so hard, is because of the liver. The output from the kidneys, however, has been acceptable.  Brad said the creatinine level is 3.0 and it should be 1. Amy s BUN has been between 107-118 and it should be about 25.(this is a level telling us how many toxins are in the blood) Brad did have Amy up and walking behind the wheelchair tonight. He felt good about that, as she also did. They had a quality, one on one, communication going. He also stated that her mood was much, much, better than it had been. Tomorrow, Brian and Brad will talk with the Dr. and social service, about where Amy will be going to, for rehab. .  Keep praying Someone s prayers, (or I should say all of our prayers) are working and it is showing up, both physically and emotionally in our Amy. It s a day at a time. We have more time than money!!!!!! Thanks Sis, Laurie, Johnny, Kurtie, Sheri, Kev, Jorren and Steve for the  comfort  visit at Brad and Amy s, house, this weekend. Brad keeps saying  What awesome family and friends we have . I will second that motion!!!!!!    We MUST trust God to provide all !!!!!  Jesus loves us all, as we are his children !!!!! 

2/26/07

I am way over due on an up date on our Amy, but I have been snowed in with Brad and Ali, at their house, with no computer. Wasn t it a beautiful weekend, on the positive side???  I m hoping that you all know that no news is good news. Since my last update, on February 23RD, I do have some good news to report. Upon entering Amy s room, we noticed first that Amy s color has improved immensely. The  yellow  look has lessenedJ Brad helped Amy, get into, some of her own clothes  and into the wheelchair on Saturday, and we all went for a walk around the unit.  She loved it . Brad pushed the wheelchair and Ali pushed the IV pole, while Mom, sat back and   enjoyed the view outside of her room. Brad helped Amy stand and walk into her room, from the hall, by herself.  GOOD JOB, AMY !!!!!  Also the NG tube, was to be taken out, as Amy made a deal with the Doctors, that she would drink 6 cans of the feeding thru out the day, if they would just pull  THE TUBE!!! . Amy was going to try to be true to the deal. Amy also can have liquids, without being thickened, but they are restricted to 500 cc, a day. A small Dixie cup is 120cc, to give you an idea, on the amount. Amy s labs. are still off. Her creatinine level is down but her bun is very elevated. http://www.medicinenet.com/creatinine_blood_test/article.htm#tocb  Check this site for info on creatinine levels http://www.labtestsonline.org/understanding/analytes/bun/test.html    Check this site for info. On BUN levels.             

Plans are being made at this time to discharge Amy to a transitional care unit, outside of the Hosp. , in hopes that she will cooperate with some very needed rehab. This is the area we are in great need for prayer.  Amy is lacking motivation and I m sure her EGO, (everything going OK) is standing in her way.  It is a journey that has to be taken and one that Amy has to be determined to take, in order to find peace. This is very depressing, stressful, frustrating and overwhelming time for Amy.  Please pray that our God will give Amy the will and strength, to take this journey to peace.   God's part is to give us strength, Amy s part is to do the work and the part of ours, is to encourage and support each other and Amy !!!!   

Thanks again for all the prayers, cards, meals, flowers, thoughts and e-mails. The support is awesome. Address is:   United Hosp.  333 Smith Ave N. St. Paul , Minn. 55102   Room 4534 Amy TeGantvoort    cluemaster@comcast.net   This is Brads E-mail address. Home phone # 651-306-9386 Home address: 8345 Copperfield    Inver Grove Heights, Mn. 55076        I will e-mail an update on Amy, with today s decisions. Brad is meeting with the social worker, and a plan of action is to be put into place. We need to pray .pray .pray.  

Happiness is; saying something nice to someone every day. We all love you, Amy, Ali and Brad. Just be patient and get strength just knowing that all of us care and are here for you, wherever, and whenever, you may need us!!!!   LYM         CAROL  .MOM  .GRAMA

2/23/07

Not to much new to report. I took Ali up to visit, but Ames was fast asleep. Ali was still so happy to be with Mom. New room is big, nice and roomy. (room # 4534) I am asking for strong prayer, again. We need to pray for Amy, to get motivated to want to put her best foot forward, with rehab. At this time, she appears to be overwhelmed with the whole plan of action. I can t blame her. Pray for Amy to be happy with taking small steps, each day, toward her goal of recovery.  Pray that Amy will open her eyes and her heart will be softened to be open to God, and to know, that she is never alone !!!!   God Bless and watch over you, Ames !!!!!!  Pray for God to watch over Brad, Ali, Brenda, Deno, Brian and all of our families, to find patience, and to take one day at a time.  This is a very hard time but it will get easier!!!!!

Carol Mom .. Grama.. God Bless all of us!!

God grant us the Serenity to accept the things we cannot change, the courage to change the things we can and the wisdom to know the difference.

2/22/07

Just a quick update on our Amy!!!  Sis and I went up for  real visit,  today. Amy is able to carry on a full, length, conversation without any difficulty.  Amy said that one reason she has been so sleepy during the day, is because the nurses are waking her up all hours of the night, to take her vitals.  Being nurses, ourselves, Sis and I, will vouch for that!!!  Also she is not a happy camper having to have only thickened liquids.  All I want is a can of sprite,  are the exact, wanting, words coming from Amy s mouth. She almost persuaded us to give her a few sips on the sly, but that would be a big NO .NO. The big  Pow-Wow  was today. A plan of action was mapped out. The first thing, on the plan, is that   Amy has to be able to tolerate 3 hours of therapy in rehab. , To regain back her strength. She will have to start with small steps, such as sit up in bed. It s going to be a slow process, but most of it depends on Amy s wanting to cooperate with the programs. Let s pray for motivation, for Amy to want to do this, and stick to it.  If this takes longer than expected, they may have to transfer her, to a transitional care unit, where the therapy isn t so strenuous, for her to do. Another change, for the 6TH time since she has been in the Hospital, is another room change. She was in and out of the room  with the view  so fast, we were a few of the lucky ones to see that awesome view, but more of you will see the getting well Amy, anywhere she goes. She is now in a private room on 4TH floor. # 4534. Brad did say, however, it is a corner room and it does have a lot of room, for all the cards, flowers and gifts, she has been receiving from everyone.  Brad say s thank you very, very much for all the support everyone is giving to Amy, Ali and himself. He has no words to express his thankfulness   so  thank you  to everyone!!!!!

2/21/07

So I would pray in faith:

Father, thank You that you have given me authority to heal every sickness and disease.  Your Word says that I will lay my hands on the sick and they will be healed.  Because there is no time or space in the spiritual realm, I even now lay my hands on Amy's body as if I were right there with her and I command that it be restored to health.  Father, I pray that you would do a miracle and regenerate her liver and kidneys.  I ask you to make her able to take in ample oxygen and that her lungs would be able to use it.  I pray that You would heal and restore Amy from the top of her head through the soles of her feet, every cell, every tissue, every organ, every system in her body.  Father, I believe You created Amy and that You are more than able to also recreate her body and I ask that You would do that now, in Jesus' name.  Thank-you Father for hearing and answering my prayer.  Amen       Joan

Well, everyone, the prayer that Joan prayed, above, (and you just prayed it, again) and all the prayer chains, have proven that there is power in prayer. So many wonderful healings have taking place. (1) Today the catheter was taken out. Amy is able to walk to the commode and go on her own, most of the time. She is supposed to ask for help, and use the call light, but Amy doesn t always do that.  Output has been good and labs continue to improve .slowly. (2) Amy still has the feeding tube in, but it is turned off, and no feeding running in from 6:00AM to 6:00PM. She is on thickened liquids. Those are liquids, like water, being thickened with a powder, to help Amy from,  swallowing wrong,  and it going into her lungs and not her stomach. Tomorrow is the day she will start eating things like Jell-O, thickened soups and juices. I know she will do just fine!!! Brad, not knowing about the thickened liquids, gave Amy a big drink of ice water, per Amy s request. She loved it and maybe even liked pulling a fast one over the nurses, as Amy knows she isn t to have liquids, yet.  She wants to prove to them  She can go home  Amy still has toxins in her blood Thus not thinking real realistic. But that is OK  (3) The aide that sat with Amy 24-7 is no longer with her. They feel she knows enough of what is going on and will not pull at her tubes. (4) Speech much better, and can carry on a fairly good conversation with company and staff.  (5) Color is improving slowly. Jaundice is still noticeable in the whites of Amy s eyes and her upper extremities. (6) Amy had her first shower with a good hair wash. How awesome!  When Brad first came in, Amy said they were sending her to Dallas, to help make her feel better. After some conversation, and Brad checking at the nurses station, as he had heard nothing of the kind they figured out what  the trip  was all about ..Amy was going to dialysis, to make her feel better. Easy vacation come easy vacation go !! (how cute was that?) The truth of the matter is: She will have to take part in an inpatient rehab program. She is not ready, at this time, as she will have to go to rehab for 3 hours every day and Amy is still very tired and continues to sleep a lot, so will have to wait until she becomes less sleepy. I m sure, that too, is right around the corner. They are hoping they can get her into Sister Kenny, right there at the United hospital. Amy has almost 1 month of no alcohol and no cigarettes. What an awesome get up and go start!!!  Amy continues to say,  I will do anything to get out of here.  A few promises have been made to Brad, if he would,    just take her home . Brad is still thinking this one over  ..if you know what I mean. Ha ha,   So keep the prayers coming Amy s, Brad s and Ali s, way. THEY ARE WORKING!!!  Brad said he also knows that Grandma Ely, is also on their side and Grandma s prayers are as good as God s. He s been talking to her, up there in heaven.  That s a hot line we should all have  .Sis and I are going up tomorrow, so first hand report will be sent tomorrow night. We are so excited about seeing and visiting with our Amy!!! Ali is doing great and so happy to hear of her Mom s daily   improvements, from Dad.  She misses Mom and is so glad she can go up there to visit. It s super good for both Amy, Ali and Brad .. So much REAL LOVE in the air!!!!!! Again Address is: United Hosp. 333 Smith Ave N. St. Paul, Minn. 55102 Amy TeGantvoort. Brad and Ali s home # is 651-306-9386 Home address is: 8345 Copperfield Way Inver Grove, Minnesota 55076

God's part is to give us strength, our part is to do the work and the part of others is to encourage and support each other!!!!    CAROL ..MOM  GRAMA

2/20/07

I was going to wait on an up date, on Amy, but I m so excited, I couldn t stop myself from hitting the keys!!!  Brad called and said that the lab, numbers,  are going down and they were going to try to give Amy  Real food . How awesome is that ????  She could, then get rid of that darn feeding tube.  I also got a report from my Brother Butch and Sister-in-law, Linda, that Amy knew who they were when they came into the room  and actually carried on a conversation.  Amy said to them I m willing to do anything, just to get out of here.     Amy s new room has an awesome view. It is known to be the room with the best view!!!  Brad took pictures and that it is!!  A visit with Amy, will give you a chance to experience this  room with the best view , and also see,  a getting well, Amy!!   Brad, Brenda, Deno and Brian, will meet with social service, tomorrow to put a plan into action. It will be a long road, but we have more time than money and we will ALL,  be here, to support her. Times like these, are when we are all drawn closer.   Thanks again for all the prayers, cards, thoughts, e-mails and visits.  The support is awesome. Address is:   United Hosp.  333 Smith Ave N. St. Paul , Minn. 55102   Room 8927 Amy TeGantvoort    cluemaster@comcast.net   This is Brads E-mail address. Home # is: 651-306-9386

Carol

2/19/07

Hi everyone A little update on our Amy Brad called and said Amy was very alert and very talkative, most of the day. Ali was up to visit and she was so glad that Mom could talkand visit with her Brad said that the Dr. did say that the numbers had gone down a bit. Thank God for thatJ Feeding tube is back in and all is a-ok with that. They continue to be up on 8TH floor.  Room 8927.  Since there is no school, Ali, I and her friend; Abby, may be taking in a movie, and just hanging out.  I will be going up to visit Amy on Wednesday so will update everyone, more then. Thanks again for all the prayers, cards, thoughts and e-mails. The support is awesome. Address is:   United Hosp.  333 Smith Ave N. St. Paul , Minn. 55102   Room 8927 Amy TeGantvoort    cluemaster@comcast.net   This is Brads E-mail address. 

Brad, Amy and Ali,

I love you dearly. I share in your pain. Know that you are in my thoughts & prayers. Our Lord is carrying you at this time of struggle.(Think of Footprints) I pray that soon you will be able to walk beside Him again. Mom/Grama

2/18/07

Things are pretty much the same with Amy at this time. She seems to have good times with being able to communicate her wants and needs. A new feeding tube was inserted on Saturday as the other was pulled out by Amy. She is tolerating her feedings very well. Amy also was scheduled to receive dialysis on Saturday, again. Amy also has a new room #. She is up on 8TH floor in room 8927. a Med. Surg. unit. Keep the cards and e-mails coming. Support is needed at this time. Address is: United Hosp. 333 Smith Ave N. St. Paul , Minn. 55102 Amy TeGantvoort. Brad and Ali s home # is 651-306-9386 Home address is: 8345 Copperfield Way Inver Grove Heights , Minnesota 55076.  cluemaster@comcast.net  Brads e-mail address.

In able to contact as many people with updates on Amy, could anyone of you, who have your own sites,  copy and past my e-mails and forward them on, to people in your own e-mail address book. . Thus, using my e-mails as a Caring Bridge between all who care about Amy, Brad and Ali.  This will help Brad, from having to explain to everyone, the happenings every day. Thanks to everyone for your thoughts and prayers. We can never have enough!!!!

Carol

2/15/07

What a nice Valentines Day, I had.  Ali and I went thru all of her school Valentine s and she had a few surprises awaiting her as she came in the door. Brad had gone up to see Amy, after work and she was very alert so he called us, actually Ali talked with Amy on the phone, so Ali and I hurried up to the Hosp. to talk to Amy in person. When we got there she wasn t quite so alert, but her and Ali got to visit with each other on this sweetheart Day!!!!   You could tell that Amy was glad to see her No new new s on Amy s liver, but at this time, the Dr. stated that the  kidneys continue to improve. Ali is getting so comfortable with all of this. Her favorite room, in the Hosp. is the family room. It has a lot of toys for all ages in it  Oh yes before I forget if you get the Pioneer Press Newspaper check out on page F4 in the Love Note section, 14. Our Brad was up to his super niceness again!!!! Ames is the first word!!!!  He put some nice words in there. Anyhow after we left the Hosp. Brad took Ali and I out for dinner at Cossetta s in Downtown St. Paul. What an awesome Italian Restaurant.  Their ice cream was to die for as was everything we had from salad to pasta, to green peppers and sausage. What a wonderful night as Brad gave me a Rose as he said   Happy Valentines day , Mom.   Brad said,   Happy Valentines Day, Ali,  and gave her, her most favorite gifts. Her talking Rose and Puppy/kitty were among her favorites. We closed the place up and headed home. Them to there s and me to mine. Being able to be with loved ones, on this special day is HAPPINESS IS: to me. Thanks Ali and Brad!!!!   We missed our Amy, tho. Next year !!!

2/14/07

It s late but I wanted to send everyone an update on Amy. It was a good  but long day. The feeding tube was inserted last night and Amy got her first feeding, thru the tube (consistency of thin malt), today, and tolerated it well Her urine output has been good, and color is better, so they are putting her dialysis, on hold, for the time being, for two reasons. (1) Her kidneys are improving slowly. She came in at a 9 and she is a 5 ½ at this time, with 1 being the best. And (2) Dialysis is very hard on the other organs, like the heart and a patient is very tired after a dialysis, and just wants to sleep. I was up to visit with Amy today, and the nurse and I comb and washed her hair. She was able to hold her head up for periods of a time and would say single words that made sense. She knew who I was and asked to hold my hand, and smiled at me. The nurse, at this time said that Amy was going to be transferred out of intensive care unit, thus the reason for the late hour for Brad. Brad went up after work and helped with the move and sat and helped Amy till about 11:30 PM making sure she was comfortable in her new surroundings and tending to certain needs. She is in a private room and I m sorry I forgot to get the room number. It s on 3RD floor, but it sounds like quite a distance away, from her old room. Our problem at hand, at this time, now, is her liver. The labs coming in are continually going up and we want them to come down. It is called a bilirubin blood test. It s a test showing an elevation in liver enzymes. http://www.medhelp.org/forums/gastro/messages/30145.html Here is a site you might want to check out. Just click on liver enzyme problems way up on top. Brad will talk to  the liver Doctor  tomorrow. He will, at that time, find out what the plan of action is going to be. The nurse did say sometime, depending on the levels, they will try to use steroids to see if this will help. We will know more about that tomorrow. Ali was so excited that Mom sat up again today and was talking. Brad is keeping her informed and letting her know we still have a very sick Mom, but Mom is in good hands and they are taking really good care of her. Ali finds comfort in this. Brad is back to work, and going up to visit Amy before work and after work. He is seeing himself coming and going. His love for Amy is very obvious!!! So, all for today. Keep the prayers coming!!!!! We will cross all these hurdles, even if it takes more time than we like. Again, Amy can have visitors for very short periods, but a card with words of encouragement for Amy, Brad and Ali, are so needed. Everyone is just awesome, in pulling together during this time. Address is: United Hosp. 333 Smith Ave N. St. Paul, Minn. 55102 Amy TeGantvoort. Brad and Ali s home # is 651-306-9386 Home address is: 8345 Cooperfield Way Inver Grove , Minnesota 55076 Happy Valentines Day to All!!!! Brad has asked me to go with him and Ali to visit with Amy and then our for supper to Ali s favorite restaurant, Ruby Tuesday s. There is sooo much love in the air!!!!! We must have trust and faith in our God!!!

2/13/07

(Being said, by all those, in the prayer chain)

Continue to pray for Carol's daughter-in-law Amy.  She is on dialysis and now has a feeding tube.  She has been sitting up at least once that I know of and yesterday got out of bed wanting to go home, so that shows her strength is improving.  She is still very sick, however.  Please pray for healing and for her to have a strong desire to regain her health.  Pray also that the medical professionals will have God's wisdom in their care of her.  And of course, pray for Amy's husband Brad, their 9-yr-old daughter Ali, Carol and all family members, to not be afraid, but to be able to trust in God!

So much sickness, Carol's daughter-in-law, Amy, and many colds and flus, etc.  I think it's time to find healing!  Thank You Lord, for bearing our sin AND our sickness on the cross.  Please break the power of the enemy over our physical beings and bring us and our loved ones all under Your protection, in Jesus' name.  Amen. Be blessed! Joan

2/12/07

A quick update on our Amy. She continues to be on dialysis at this time. No vent at this time. They decided to wait on that. Brad said the nurse had her sit up in bed today and did well with that. She appeared more alert. Still jaundiced, but this will take sometime to clear up. Amy really unable to communicate, but Brad seems to be able to understand her.  The Dr s said Amy is stable but would like her to be improving. She continues to be on IV antibiotic and Vitamins. She is allowed visitors at this time, for short periods and cards would be real niceJ  Address is:   United Hosp.  333 Smith Ave N. St. Paul , Minn. 55102   Room 3923 Amy Te Gantvoort    cluemaster@comcast.net   This is Brads E-mail address if anyone wants to send an e-mail of encouragement to Brad and Ali !!!   . Ali went up to visit her Mom on Saturday and it went great. Brad did an awesome job of preparing Ali, before she went up and Ali wanted to go and see Mom.  Amy was alert enough to say Hi, (sorta) to Ali. Ali, Brad and Amy had some quality time together. Now Ali has a real picture not an imaginary one in her mind. She had a lot of questions, and Brad was right there with child needed answers, but very honest. Ali was very glad she went up for the visit. Thanks for all the prayers and thanks to the prayer team from my church, Woodland Hills, for going to pray for Amy with her. There is power in prayer!!!!  Thanks to all who have sent e-mails, cards, phone calls with their concerns. All of these mean the world to us, as support and togetherness,  is what is needed during a time like this, and always    . God Bless all of us!!!  Carol

2/11/07

Brad just called and said that Amy was responding more today and with no dialysis, is passing some urine. HOW GREAT!!! My friends, from my church, Woodland Hills, went down, yesterday, to pray with Amy and blessed her with holy oils. Brad was there and he said Amy opened her eyes and had The look in her eyes . He reassured her and said,   Ames , you re not getting last rights.  These are friends of Mom s from church, and you know Mom. They are just praying for you to get well  Pammy, Amy s sister, was there and said it was the power of prayer that woke Amy up and has been more alert today than she has been, in days. Brad thought it may have been, that Amy, just got scared to death. Whatever it was, She opened her eyes, and is way more alert     MY Sis, called and said she just has to go down to see Amy, and be there for Brad, so her and Johnny are going down tonight, and so are Kurtie and Jill.  This is so hard to believe, for everyone!!! Thanks for all your support!!! Sis also told me that a friend (Jordan)of Laurie s (my granddaughter) was in the car on the way home from school today and Jorden (13) said too, that she is going to ask her Dad to put Amy on their prayer chain at their church, in Lakeville.  SUPER!!!!!!!  Also, I heard from a friend I met on our last cruise and he, too, is having Amy put on there prayer chain in his church, in Indiapolis , Indiana .  There is a God!!!! Thanks Mikki, Joan and Paula, for going down to pray with Amy!!! How awesome!!! I thank all groups, for all their prayers.  Have a good night. Love carol

2/9/07

Brad just called me and said he called the Hosp. to see how Amy was. Bad news. They are thinking they are going to put her on a ventilator. Her breathing was so bad tonight He said, that the  nurse said she is going to get bad before she gets better. Amy is so yellow. Black stools, bad yeast infection on her skin, and that rash all over her legs. Her temp. was 99.8, tho. She is getting vitamins and antibiotic thru the IV. Dialysis site in her neck. She will not be getting dialysis tomorrow as they are going to see how her kidneys work on there own. Everyone PRAY all goes better tomorrow!!!!!!  Ali is doing OK. When we are doing something, she will say out of the blue,  I wonder what Mommy is doing  Brad has been very open with her and she knows that any question she has is a good question. Brad did say, she was crying in bed tonight. He comforted her and said she could sleep with him. He did say, too, that Ali wants to go to the Hosp. on Monday, to visit Mom. Brad has had just the right words and made just the right decisions, for Ali. What an awesome Dad!!!! Well, I m off to bed. I will be with Ali tomorrow when she gets home from school. She would like to have some friends over, so that is our plan.  Pray all goes well for Amy today!!!!!  Also keep the lines open to Brad. He needs you guys, bad!!!!!!!! Keep checking up with him. Keep calling him!!!!  Be sure to ask  him if he wants you to be with him, or if he just wants to talk. HE NEEDS US MORE THAN EVER NOW!!!!  Thanks for being such a wonderful family!!!!   Luck-a-nutch   MOM  ILYM  XXXX OOOO

2/8/07

Brad sent me this site to check out. http://www.netdoctor.co.uk/diseases/facts/alcliver.htm Brad needs the positive feedback, right now What an awesome family we have  I love you more.  Brad just called and said he is down at the Hosp. right now. He said the dialyses did do some good, last night, and Amy is passing some fluids.( Amy has a catheter in) In numbers she was a 9 (out of 10) before and now she is a 7, so there is improvement.  He also said she wanted to go home last night so they had to give her some valium. Because of the slow processing in her organs, she is really out this morning. Brad said Gail is on the road as we talk. I will be going up there later when she wakes up. Ali had a lot of questions for her Dad this morning and Brad was there for her. She is scared and able to talk about it. Talk to you later and if I hear anything I will call or e-mail.  ILYM  MOM  XXXX OOOO

2/7/07

Just got a call from Brad  .. I m so scared. The Dr s. said it doesn t look good .They think Amy s kidneys are failing and called in a kidney Dr.  They are thinking about putting her on dialysis.   Brad is so scared as he is trying to do everything that will make her feel good. He brought up her favorite movie and their wedding tape that she loves to watch. He s whispering positive things in her ear. They said she has alcohol induced hepatitis.  She has been just sleeping. Very depressed. I told Brad that I put Amy, him and Ali, on the prayer chain at church. He said  good what do we have to lose . He said   A lot of people believe in that   I so want God to make everything OK.  Amy needs soooo much prayer. I m so glad I at least learned how to pray a little this past year. Pray for Brad, to be strong and be there for Amy, and for Ali, our precious Ali, that our God will give her comfort and trust that all will be OK.  You guys,,  .this is terrible:  .pray   pray  pray!!!!!    Carol 

2/6/07

Hi  .   I just wanted to tell you, that my Brad called and Amy is in the Hosp. She got all jaundiced last night so they took her in today. He said she will be in at least a couple of days.  She is at United Hosp. Brad said he will do anything and give up anything to just help Amy,  I feel so bad. I wish I could take his hurt away. And Amy s struggles, too. It s not easy being a Mom is it?  Our poor Ali. I bet she is so confused and worried.   Well, thanks for the ear. Maybe you could put them on the prayer chain at church, too. It can t hurt!!!   TTYL